Using Communication Assistants in Qualitative Health Research

被引:4
作者
Dee-Price, Betty-Jean M. [1 ,2 ]
机构
[1] Flinders Univ S Australia, Coll Med & Publ Hlth, Adelaide, Australia
[2] Flinders Univ S Australia, Sturt Rd, Adelaide, SA 5042, Australia
关键词
communication assistants; qualitative research; complex communication access needs; communication disability; inclusive research; augmentative and alternative communication; ethics; ALTERNATIVE COMMUNICATION; PATIENT COMMUNICATION; INCLUDING PEOPLE; CEREBRAL-PALSY; DISABILITY; CHILDREN; AAC; INTERPRETERS; PERSPECTIVES; PARTICIPANTS;
D O I
10.1177/10497323231169495
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Qualitative health research is hampered by narrow constructs of human communication that privilege participants with access to spoken and written (normative) language. With limited awareness of such things as augmentative and alternative communication (AAC) or the rights of people with complex communication access needs, qualitative research becomes a 'picker and chooser' of whose voices are included in studies and whose are not. In order for 'voices' to be heard, adaptations are required which include the acknowledgement and support of communication assistants (informal and formal) who can help provide a communication bridge between people with complex communication access needs and researcher(s). Yet little is known of who qualifies as a communication assistant nor the scope and limitations of this role in health research. Beginning with communication diversity arguments the article compares communication assistants with language interpreters before discussing practice and implications for health research.
引用
收藏
页码:663 / 672
页数:10
相关论文
共 83 条
[1]   Translation decisions in qualitative research: a systematic framework [J].
Abfalter, Dagmar ;
Mueller-Seeger, Julia ;
Raich, Margit .
INTERNATIONAL JOURNAL OF SOCIAL RESEARCH METHODOLOGY, 2021, 24 (04) :469-486
[2]   Australian parents' experiences of speech generating device (SGD) service delivery [J].
Anderson, Kate ;
Balandin, Susan ;
Stancliffe, Roger .
DEVELOPMENTAL NEUROREHABILITATION, 2014, 17 (02) :75-83
[3]  
Ashby C., 2011, DISABILITY STUDIES Q, V31, DOI DOI 10.18061/DSQ.V31I4.1723
[4]   Impact of patient communication problems on the risk of preventable adverse events in acute care settings [J].
Bartlett, Gillian ;
Blais, Regis ;
Tamblyn, Robyn ;
Clermont, Richard J. ;
MacGibbon, Brenda .
CANADIAN MEDICAL ASSOCIATION JOURNAL, 2008, 178 (12) :1555-1562
[5]   Narrative Depictions of Working With Language Interpreters in Cross-Language Qualitative Research [J].
Bergen, Nicole .
INTERNATIONAL JOURNAL OF QUALITATIVE METHODS, 2018, 17 (01)
[6]  
Beukelman D. R., 2013, AUGMENTATIVE ALTERNA
[7]  
Blackstone S., 2009, SIG 12 Perspectives on Augmentative and Alternative Communication, V18, P78, DOI [10.1044/aac18.3.78, DOI 10.1044/AAC18.3.78]
[8]   Patient Communication in Health Care Settings: new Opportunities for Augmentative and Alternative Communication [J].
Blackstone, Sarah W. ;
Pressman, Harvey .
AUGMENTATIVE AND ALTERNATIVE COMMUNICATION, 2016, 32 (01) :69-79
[9]  
BLATT B, 1981, J PSYCHIAT TREAT EV, V3, P183
[10]   A Systematic Review of Access to Rehabilitation for People with Disabilities in Low- and Middle-Income Countries [J].
Bright, Tess ;
Wallace, Sarah ;
Kuper, Hannah .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2018, 15 (10)