Quality of Life in Parents of Turkish and Syrian Pediatric Bone Marrow Transplant and Oncology Patients

被引:1
作者
Sezgin, G. [1 ,2 ]
Yaylaci, A. [1 ,2 ]
Unal, I [3 ]
机构
[1] Cukurova Univ, Med Sch, Dept Pediat Oncol, Adana, Turkiye
[2] Cukurova Univ, Med Sch, Pediat BMT Unit, Adana, Turkiye
[3] Cukurova Univ, Med Sch, Dept Biostat, Adana, Turkiye
关键词
Childhood cancer; health-related quality of life; migration; parents; MENTAL-HEALTH; CANCER; CHILDREN; IMPACT; SF-36;
D O I
10.4103/njcp.njcp_269_23
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background: The success of the treatment depends on the well-being of the parents in pediatric cancer patients. In addition, migrants need to deal with the consequences of war.Aim: Our purpose was to compare the HRQoL of parents of Syrian and Turkish children followed in our bone marrow transplant and oncology units.Materials and Methods: One hundred SF 36 questionnaires, fifty from each group were collected between October 2019 and March 2020 in this cross-sectional study. Demographic characteristics of the patients (sex, age, cancer type, presence of relapse, duration of follow-up) and education level of parents were recorded. Analyses were performed using IBM SPSS Statistics version 20.0.Results: Turkish parents reported better results in physical functioning, emotional well-being, physical pain, general health, and physical health composite score (P < 0.05). There were more fathers in the Syrian group and education status was significant between the two groups (P = 0.01, P = 0.001, respectively). There was no correlation between QoL and education levels in the Turkish group. In Syrian parents, pain score was high in middle school graduates (P = 0.043). In the presence of relapse, although the physical function score decreased, the physical role function score increased in Turkish parents (P = 0.0035, P = 0.005, respectively). Syrian parents' emotional role function and energy/fatigue score were both increased when children had relapses (P = 0.027for both).Conclusion: Migration is a complex issue. Turkish parents were better in physical functioning, emotional well-being, physical pain, general health, and physical health composite score. Screening for parental burden, assisting them to find appropriate support services is essential in improving the health and QoL of both our patients and their parents.
引用
收藏
页码:1563 / 1567
页数:5
相关论文
共 50 条
[41]   Taste and smell function in pediatric blood and marrow transplant patients [J].
Cohen, J. ;
Laing, D. G. ;
Wilkes, F. J. .
SUPPORTIVE CARE IN CANCER, 2012, 20 (11) :3019-3023
[42]   Systematic review of gastrostomy complications and outcomes in pediatric cancer and bone marrow transplant [J].
Evans, James ;
Gardiner, Breeana ;
Green, Dan ;
Gibson, Faith ;
O'Connor, Graeme ;
Lanigan, Julie .
NUTRITION IN CLINICAL PRACTICE, 2021, 36 (06) :1185-1197
[43]   Complementary and Alternative Medicine Methods Used Among Turkish Pediatric Oncology Patients [J].
Erdem, Emine ;
Efe, Yagmur Sezer ;
Bayat, Meral ;
Uslu, Nevin ;
Sivaci, Lugen ;
Yilmaz, Ebru .
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2020, 52 :E103-E107
[44]   Health utility and quality of life in pediatric liver transplant recipients [J].
Bharij, Aashiv ;
Neighbors, Katie ;
Alonso, Estella M. ;
Mohammad, Saeed .
PEDIATRIC TRANSPLANTATION, 2020, 24 (04)
[45]   Predictors of health-related quality of life over time among pediatric hematopoietic stem cell transplant recipients [J].
Loiselle, Kristin A. ;
Rausch, Joseph R. ;
Bidwell, Sarah ;
Drake, Sarah ;
Davies, Stella M. ;
Pai, Ahna L. H. .
PEDIATRIC BLOOD & CANCER, 2016, 63 (10) :1834-1839
[46]   Pediatric Feeding and Swallowing Disorders After Bone Marrow Transplant [J].
Buringrud, Jessica L. ;
Redle, Erin E. ;
Cowen, Sarah E. .
JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2012, 34 (06) :436-441
[47]   Hypophosphatemia and hypouricemia in pediatric allogeneic bone marrow transplant recipients [J].
Uçkan, D ;
Çetin, M ;
Dida, A ;
Batu, A ;
Tuncer, M ;
Tezcan, I .
PEDIATRIC TRANSPLANTATION, 2003, 7 (02) :98-101
[48]   ABDOMINAL COMPLICATIONS IN PEDIATRIC BONE-MARROW TRANSPLANT RECIPIENTS [J].
DAY, DL ;
CARPENTER, BLM .
RADIOGRAPHICS, 1993, 13 (05) :1101-1112
[49]   Organ toxicity and quality of life after allogeneic bone marrow transplantation in pediatric patients: a single centre retrospective analysis [J].
Matthes-Martin, S ;
Lamche, M ;
Ladenstein, R ;
Emminger, W ;
Felsberger, C ;
Topf, R ;
Gadner, H ;
Peters, C .
BONE MARROW TRANSPLANTATION, 1999, 23 (10) :1049-1053
[50]   Organ toxicity and quality of life after allogeneic bone marrow transplantation in pediatric patients: a single centre retrospective analysis [J].
S Matthes-Martin ;
M Lamche ;
R Ladenstein ;
W Emminger ;
C Felsberger ;
R Topf ;
H Gadner ;
C Peters .
Bone Marrow Transplantation, 1999, 23 :1049-1053