Rheumatic disease;
Access to medical care;
Satisfaction;
COVID-19;
Communication;
Online questionnaire;
D O I:
10.1007/s00296-023-05413-3
中图分类号:
R5 [内科学];
学科分类号:
1002 ;
100201 ;
摘要:
The COVID-19 hurt various lifestyle aspects, especially the treatment and follow-up of patients with chronic diseases such as autoimmune inflammatory rheumatic diseases (RD). The new circumstances changed the frequency of medical examinations and the way patients with rheumatic diseases are followed up. The objective is to study the impact of COVID-19 on RD patients' satisfaction with access to medical services. A national multicenter observational cross-sectional anonymous online survey was conducted on patients with RD using a specially developed web-based platform and structured questionnaire https://rheumatologycovid19.bg/. The study was carried out with the support of intra-university project.6/2022 MU-Plovdiv. 1288 patients participated, with an average age of 47.03 (SD +/- 12.80 years), of whom 992 (81.6%) were women. The questionnaire contained 41 questions grouped into 5 panels. Descriptive statistics were used-mean, alternative analysis, logistic regression and Decision Tree using the CRT (classification and regression trees) method. The study found that RD patients' satisfaction with access to medical services was influenced by communication type and the frequency of visits to the rheumatologist, difficulties in prescribing and finding medicines and the presence of comorbidities. The likelihood of patients' satisfaction with their rheumatologist was 5.5 and 3 times higher for in-person and other means of communication, respectively, compared to those without any communication. The relative share of patients who communicated by phone was larger (59%) compared to pre-pandemic (41%), where direct contact with the physician prevailed (80%). The results of the study confirmed the need to optimize remote access to medical care for patients with RD during the pandemic.
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Albrecht, Katinka
;
Redeker, Imke
论文数: 0引用数: 0
h-index: 0
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Redeker, Imke
;
论文数: 引用数:
h-index:
机构:
Aringer, Martin
;
Marschall, Ursula
论文数: 0引用数: 0
h-index: 0
机构:
Inst Hlth Syst Res, Wuppertal, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Marschall, Ursula
;
Strangfeld, Anja
论文数: 0引用数: 0
h-index: 0
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Strangfeld, Anja
;
Callhoff, Johanna
论文数: 0引用数: 0
h-index: 0
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Charite Univ Med Berlin, Inst Social Med Epidemiol & Hlth Econ, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
机构:
Massachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
Massachusetts Gen Hosp, Clin Epidemiol Program, Mongan Inst, Dept Med, Boston, MA 02114 USA
Harvard Med Sch, Boston, MA 02115 USAMassachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
D'Silva, Kristin M.
;
Wallace, Zachary S.
论文数: 0引用数: 0
h-index: 0
机构:
Massachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
Massachusetts Gen Hosp, Clin Epidemiol Program, Mongan Inst, Dept Med, Boston, MA 02114 USA
Harvard Med Sch, Boston, MA 02115 USAMassachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
机构:
Univ Otago, Dept Med, Wellington, New ZealandUniv Otago, Dept Med, Wellington, New Zealand
Grainger, Rebecca
;
Kim, Alfred H. J.
论文数: 0引用数: 0
h-index: 0
机构:
Washington Univ, Sch Med, Dept Med, Div Rheumatol, St Louis, MO 63110 USAUniv Otago, Dept Med, Wellington, New Zealand
Kim, Alfred H. J.
;
Conway, Richard
论文数: 0引用数: 0
h-index: 0
机构:
St James Hosp, Dept Rheumatol, Dublin, IrelandUniv Otago, Dept Med, Wellington, New Zealand
Conway, Richard
;
Yazdany, Jinoos
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Dept Med, San Francisco Gen Hosp, Div Rheumatol, San Francisco, CA 94143 USAUniv Otago, Dept Med, Wellington, New Zealand
Yazdany, Jinoos
;
Robinson, Philip C.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Queensland, Fac Med, Sch Clin Med, Herston, Qld, Australia
Royal Brisbane & Womens Hosp, Metro North Hosp & Hlth Serv, Herston Rd, Herston, Qld, AustraliaUniv Otago, Dept Med, Wellington, New Zealand
机构:
Univ Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Univ Penn, Dept Med, Div Pulm Allergy & Crit Care, Perelman Sch Med, Philadelphia, PA 19104 USA
Univ Penn, Perelman Sch Med, Dept Med Eth & Hlth Policy, Philadelphia, PA 19104 USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA 19104 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Hart, Joanna L.
;
Turnbull, Alison E.
论文数: 0引用数: 0
h-index: 0
机构:
Johns Hopkins Univ, Sch Med, Div Pulm & Crit Care Med, Baltimore, MD 21205 USA
Johns Hopkins Univ, Bloomberg Sch Publ Hlth, Dept Epidemiol, Baltimore, MD 21205 USA
Johns Hopkins Univ, Outcomes Crit Illness & Surg OACIS Grp, Baltimore, MD 21205 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Turnbull, Alison E.
;
Oppenheim, Ian M.
论文数: 0引用数: 0
h-index: 0
机构:
Johns Hopkins Univ, Sch Med, Div Pulm & Crit Care Med, Baltimore, MD 21205 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Oppenheim, Ian M.
;
Courtright, Katherine R.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Univ Penn, Dept Med, Div Pulm Allergy & Crit Care, Perelman Sch Med, Philadelphia, PA 19104 USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA 19104 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Albrecht, Katinka
;
Redeker, Imke
论文数: 0引用数: 0
h-index: 0
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Redeker, Imke
;
论文数: 引用数:
h-index:
机构:
Aringer, Martin
;
Marschall, Ursula
论文数: 0引用数: 0
h-index: 0
机构:
Inst Hlth Syst Res, Wuppertal, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Marschall, Ursula
;
Strangfeld, Anja
论文数: 0引用数: 0
h-index: 0
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Strangfeld, Anja
;
Callhoff, Johanna
论文数: 0引用数: 0
h-index: 0
机构:
German Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
Charite Univ Med Berlin, Inst Social Med Epidemiol & Hlth Econ, Berlin, GermanyGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany
机构:
Massachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
Massachusetts Gen Hosp, Clin Epidemiol Program, Mongan Inst, Dept Med, Boston, MA 02114 USA
Harvard Med Sch, Boston, MA 02115 USAMassachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
D'Silva, Kristin M.
;
Wallace, Zachary S.
论文数: 0引用数: 0
h-index: 0
机构:
Massachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
Massachusetts Gen Hosp, Clin Epidemiol Program, Mongan Inst, Dept Med, Boston, MA 02114 USA
Harvard Med Sch, Boston, MA 02115 USAMassachusetts Gen Hosp, Div Rheumatol Allergy & Immunol, Boston, MA 02114 USA
机构:
Univ Otago, Dept Med, Wellington, New ZealandUniv Otago, Dept Med, Wellington, New Zealand
Grainger, Rebecca
;
Kim, Alfred H. J.
论文数: 0引用数: 0
h-index: 0
机构:
Washington Univ, Sch Med, Dept Med, Div Rheumatol, St Louis, MO 63110 USAUniv Otago, Dept Med, Wellington, New Zealand
Kim, Alfred H. J.
;
Conway, Richard
论文数: 0引用数: 0
h-index: 0
机构:
St James Hosp, Dept Rheumatol, Dublin, IrelandUniv Otago, Dept Med, Wellington, New Zealand
Conway, Richard
;
Yazdany, Jinoos
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Dept Med, San Francisco Gen Hosp, Div Rheumatol, San Francisco, CA 94143 USAUniv Otago, Dept Med, Wellington, New Zealand
Yazdany, Jinoos
;
Robinson, Philip C.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Queensland, Fac Med, Sch Clin Med, Herston, Qld, Australia
Royal Brisbane & Womens Hosp, Metro North Hosp & Hlth Serv, Herston Rd, Herston, Qld, AustraliaUniv Otago, Dept Med, Wellington, New Zealand
机构:
Univ Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Univ Penn, Dept Med, Div Pulm Allergy & Crit Care, Perelman Sch Med, Philadelphia, PA 19104 USA
Univ Penn, Perelman Sch Med, Dept Med Eth & Hlth Policy, Philadelphia, PA 19104 USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA 19104 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Hart, Joanna L.
;
Turnbull, Alison E.
论文数: 0引用数: 0
h-index: 0
机构:
Johns Hopkins Univ, Sch Med, Div Pulm & Crit Care Med, Baltimore, MD 21205 USA
Johns Hopkins Univ, Bloomberg Sch Publ Hlth, Dept Epidemiol, Baltimore, MD 21205 USA
Johns Hopkins Univ, Outcomes Crit Illness & Surg OACIS Grp, Baltimore, MD 21205 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Turnbull, Alison E.
;
Oppenheim, Ian M.
论文数: 0引用数: 0
h-index: 0
机构:
Johns Hopkins Univ, Sch Med, Div Pulm & Crit Care Med, Baltimore, MD 21205 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Oppenheim, Ian M.
;
Courtright, Katherine R.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA
Univ Penn, Dept Med, Div Pulm Allergy & Crit Care, Perelman Sch Med, Philadelphia, PA 19104 USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA 19104 USAUniv Penn, Perelman Sch Med, Palliat & Adv Illness Res PAIR Ctr, Philadelphia, PA 19104 USA