Parent experiences of their children's diagnosis with autism, attention deficit hyperactivity disorder, or both conditions

被引：2

作者：

Sainsbury, Willow J. ^{[1
]}

Bowden, Chris J. ^{[1
]}

Carrasco, Kelly D. ^{[2
]}

Whitehouse, Andrew J. O. ^{[2
]}

Waddington, Hannah ^{[1
]}

机构：

[1] Victoria Univ Wellington, Fac Educ, Wellington, New Zealand

[2] Telethon Kids Inst, Perth, Australia

来源：

INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES | 2024年 / 70卷 / 07期

基金：

英国医学研究理事会;

关键词：

Autism; ADHD; co-occurring; diagnosis; experience; reflexive thematic analysis; SPECTRUM DISORDER; ADHD; PREVALENCE; PATHWAYS;

D O I：

10.1080/20473869.2023.2166197

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Purpose: A comparison of parents' experiences of getting a diagnosis for their child with autism, attention deficit hyperactivity disorder (ADHD) and both diagnoses can inform our understanding of common and unique themes across these neurodevelopmental conditions.Method: A quantitative and qualitative online anonymous survey of 288 New Zealand parents of children diagnosed with autism (n = 111), ADHD (n = 93), or both conditions (n = 84) was conducted. Open-ended questions were analysed using reflexive thematic analysis.Results: Parents described an adversarial diagnosis and support system where seemingly arbitrary criteria and thresholds were applied. Key themes specific to the different diagnostic groups were also identified.Conclusions: Common themes of parents' experience across the different neurodevelopmental conditions highlight the need for changes to the diagnostic process.

引用

页码：1173 / 1183

页数：11

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