A qualitative exploration of the non-financial costs of cancer care for Aboriginal and Torres Strait Islander Australians

被引：2

作者：

Cummins, Rachel ^{[1
]}

Preston, Robyn ^{[2
,3
,11
]}

Topp, Stephanie M.

Taylor, Judy ^{[3
]}

Larkins, Sarah ^{[3
]}

Callander, Emily ^{[4
,5
,6
]}

Bell, Lorraine ^{[7
,8
]}

Arley, Brian ^{[9
]}

Garvey, Gail ^{[7
,10
]}

机构：

[1] James Cook Univ, Coll Med & Dent, Djiru Jirrabal Bwgcolman, Bebegu Yumba, Townsville, Australia

[2] CQUniv, Coll Sci & Sustainabil, Sch Hlth Med & Appl Sci, Publ Hlth, Townsville, Australia

[3] James Cook Univ, Coll Med & Dent, Townsville, Australia

[4] James Cook Univ, Coll Publ Hlth Med & Vet Sci, Townsville 4811, Australia

[5] Monash Univ, Sch Publ Hlth & Prevent Med, Melbourne, Vic 3004, Australia

[6] Univ Technol Sydney, Sch Publ Hlth, Ctr Hlth Serv Management, Sydney, NSW, Australia

[7] Menzies Sch Hlth Res, Darwin, NT, Australia

[8] CSIRO, Australian eHlth Res Ctr, Brisbane, Qld, Australia

[9] Charles Darwin Univ, Daru Tudugal Menzies Sch Hlth Res, Darwin, Australia

[10] Univ Queensland, Fac Med, Sch Publ Hlth, Darwin, Australia

[11] James Cook Univ, Coll Med & Dent, Bebegu Yumba, Townsville, Australia

来源：

AUSTRALIAN AND NEW ZEALAND JOURNAL OF PUBLIC HEALTH | 2023年 / 47卷 / 05期

基金：

澳大利亚国家健康与医学研究理事会;

关键词：

Aboriginal and Torres Strait Islander; cancer; out of pocket costs; social costs; barriers to care; INDIGENOUS AUSTRALIANS; HEALTH; PEOPLES; PERSPECTIVES; EXPERIENCES; DIAGNOSIS;

D O I：

10.1016/j.anzjph.2023.100085

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Objective: Knowledge is growing about cancer care and financial costs for Aboriginal and Torres Strait Islander people. However, much remains unknown about the true costs of cancer care, encompassing financial, emotional, and spiritual aspects. We aimed to explore and explain how non-financial costs affect the health-seeking behaviours of these clients.Methods: Following Indigenous research protocols, this research was led by Aboriginal and Torres Strait Islander researchers and guided by Indigenous Hospital Liaison Officers. In-depth interviews and focus groups were conducted with 29 participants (Aboriginal and Torres Strait Islander cancer clients, their carers, and cancer-care professionals) at two Queensland public hospitals.Results: Four interwoven themes encompass non-financial costs of healthcare: leaving home and family; loss of control during cancer treatment; health of the spirit; social costs. The Aboriginal relational concept of 'being held' is useful in considering client, family, and carer as central to care with the Indigenous Hospital Liaison Officer two-way interpreting between the care and client team.Implications for Public Health: Framing the reasons that clients and carers have difficulty in engaging in treatment as 'costs' enables a focus on how the health system itself is implicated in the disengagement of Aboriginal and Torres Strait Islander clients from treatment.

引用

页数：8

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