Palliative Care for Patients With Multiple Sclerosis Recommendations Emerging From a Case Study

被引:1
|
作者
Wilder, Carolyn Ann [1 ,2 ,3 ]
机构
[1] Univ Calif San Diego, Neurosci Div, La Jolla, CA USA
[2] Loma Linda Univ, Sch Nursing, Loma Linda, CA USA
[3] 4231 Calle Vista, Oceanside, CA 92057 USA
关键词
affective symptoms; caring; CNS; demyelinating autoimmune diseases; disease; interdisciplinary health team; multidisciplinary care teams; multiple sclerosis; palliative care; palliative medicine; quality of life; UNITED-STATES; DISEASE; MANAGEMENT; PEOPLE; BURDEN;
D O I
10.1097/NJH.0000000000000912
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Multiple sclerosis (MS) affects more than 2.8 million people worldwide and is an incurable, heterogeneous, chronic, degenerative, demyelinating, immune-mediated neurological disease of the central nervous system. It affects the physical, mental, psychosocial, financial, and spiritual dimensions of patients and their families. Given this illness trajectory and the multiple complex symptoms associated with MS, palliative care services would improve the quality of life for MS patients. Palliative care is a human right for all patients with a life-limiting, progressive disease. The goal of palliative care is the prevention and relief of suffering by means of assessment and treatment that holistically addresses symptoms and suffering. Thus, this article argues for the early integration of palliative care for persons given a diagnosis of MS. This argument is underscored by the analysis of a case study of a typical patient with MS who would have benefited from conjunctive palliative care.
引用
收藏
页码:12 / 17
页数:6
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