Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry

被引:9
作者
Kalayci, Erdinc [1 ]
Uzunaslan, Imran [1 ]
Uzunaslan, Serif [2 ]
机构
[1] Ankara Univ, Dept Social Work, Ankara, Turkey
[2] Firat Univ, Dept Social Work, TR-23000 Elazig, Turkey
关键词
Schizophrenia; caregiver; burden; qualitative method; FAMILY CAREGIVERS; MENTAL-HEALTH; OF-LIFE; SUPPORT; STIGMA; DISORDERS; ILLNESS; PEOPLE; CARE;
D O I
10.1177/00207640221114564
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Background: Parents of children with schizophrenia struggle with emotional, social, and economic burdens because they do not receive adequate support and experience difficulties. Aim: To determine the caregiver burden experiences of parents who care for schizophrenic patients and to provide in-depth data on their feelings, thoughts, and opinions on this issue. Methods: In this study, the phenomenological method was used. In-depth interviews were conducted with 13 parents. Maxqda 2020 was used for the analysis of the research data. Results: In our qualitative study, it was concluded that caregivers were stigmatized by their environment, exposed to social isolation, and stigmatized themselves. It has been determined that the social isolation experienced by the parents negatively affects them economically, socially, and emotionally. Conclusion: The results of this study were discussed within the framework of three themes: emotional burden, social burden, and economic burden experienced by caregivers.
引用
收藏
页码:543 / 550
页数:8
相关论文
共 52 条
[41]   Perception of social support and psychotic symptoms among persons with schizophrenia: A strategy to lessen caregiver burden [J].
Peng, Man-Man ;
Zhang, Tian-Ming ;
Liu, Ke-Zhi ;
Gong, Ke ;
Huang, Chao-Hua ;
Dai, Guang-Zhi ;
Hu, Shi-Hui ;
Lin, Fu-Rong ;
Chan, Sherry Kit Wa ;
Ng, Siuman ;
Ran, Mao-Sheng .
INTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY, 2019, 65 (7-8) :548-557
[42]  
Perese Eris F, 2005, Issues Ment Health Nurs, V26, P591, DOI 10.1080/01612840590959425
[43]   Quality of life in family caregivers of schizophrenia patients in Spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support [J].
Ribe, Jose M. ;
Salamero, Manel ;
Perez-Testor, Carles ;
Mercadal, Josep ;
Aguilera, Concepcion ;
Cleris, Margarida .
INTERNATIONAL JOURNAL OF PSYCHIATRY IN CLINICAL PRACTICE, 2018, 22 (01) :25-33
[44]  
Lima ICS, 2017, REV PESQUI-CUID FUND, V9, P1081, DOI 10.9789/2175-5361.2017.v9i4.1081-1086
[45]   A thematic analysis of families living with schizophrenia [J].
Saunders, JC ;
Byrne, MM .
ARCHIVES OF PSYCHIATRIC NURSING, 2002, 16 (05) :217-223
[46]   Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals [J].
Schulze, B ;
Angermeyer, MC .
SOCIAL SCIENCE & MEDICINE, 2003, 56 (02) :299-312
[47]  
Tristiana RD, 2019, Journal of Psychosocial Rehabilitation and Mental Health, V6, P141, DOI [10.1007/s40737-019-00144-w, DOI 10.1007/S40737-019-00144-W, 10.1007/s40737-019-00144-w]
[48]  
Uzunaslan, 2022, TOPLUM SOSYAL HIZMET, V33, P1, DOI [10.33417/tsh.933131, DOI 10.33417/TSH.933131]
[49]   Family caregiver burden in mental illnesses: The case of affective disorders and schizophrenia - a qualitative exploratory study [J].
von Kardorff, Ernst ;
Soltaninejad, Ali ;
Kamali, Mohammad ;
Shahrbabaki, Mahin Eslami .
NORDIC JOURNAL OF PSYCHIATRY, 2016, 70 (04) :248-254
[50]  
World Health Organization, 1998, NAT MENT ILLN SCHIZ