Evaluation of patient-reported outcome measures in burn-specific tools: A systematic review

被引:3
作者
Li, Calandra [1 ]
Solish, Max [1 ]
Rogers, Alan D. [1 ,2 ,3 ]
机构
[1] Univ Toronto, Temerty Fac Med, Toronto, ON, Canada
[2] Sunnybrook Hlth Sci Ctr, Ross Tilley Burn Ctr, D718,2075 Bayview Ave, Toronto, ON M4N 3M5, Canada
[3] Univ Toronto, Dept Surg, Div Plast Reconstruct & Aesthet Surg, Toronto, ON, Canada
关键词
Patient reported outcome measures; Burn care; Thermal injury; Quality improvement; Biopsychosocial model of illness; Rehabilitation; Reintegration; Pediatric burn; HEALTH-STATUS; RISK-FACTORS; CHILDREN; INJURY; IMPACT; VALIDATION; SURVIVORS; RECOVERY; ADULTS; MODEL;
D O I
10.1016/j.burns.2023.10.004
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
Introduction: Patient-reported outcome measures (PROMs) are now well-established tools to evaluate the quality of patient-centred care. Due to the multi-faceted and multi-disciplinary nature of the practice of burn care, as well as the range of significant potential sequelae, PROM's should form a fundamental component of burn quality improvement programs. We aim to 1. Explore biological, psychological, and social considerations that are currently listed in burn-specific PROM tools, as well as their efficacy, 2. Evaluate biological, psychological, and social factors that are considered in new burn-specific PROM tools or those under development, and 3. Identify any opportunities with respect to burn-specific PROM tools, in order to inform future investigation in this area.Methods: A search was performed of MEDLINE (Ovid), EMBASE, CINAHL, and the Cochrane Library databases. Two independent reviewers screened article titles/abstracts and then the full texts using Covidence. All studies were graded independently according to the Quality Rating Scheme for Studies and Other Evidences. Results: The initial search yielded 552 references. Based on ab initio inclusion and exclusion criteria, 133 full-text studies were assessed for eligibility, and 21 articles were ultimately included in the systematic review. Due to study heterogeneity, a qualitative synthesis was conducted. Existing burn-specific PROMs covered a range of biological, psychological, and social factors affecting adult and paediatric patients with burn injury, but several studies required additional PROMs for a thorough evaluation. Burn-specific PROM tools under development are poised to fill this deficit. Conclusion: Major burn injuries are a unique form of trauma, requiring coordinated man-agement that considers numerous factors not relevant to other patient populations. Further research is necessary to validate existing burn-specific PROM tools and to develop more comprehensive burn-specific PROM measures that more comprehensively incorporate the bio-psycho-social model of health.(c) 2023 Elsevier Ltd and ISBI. All rights reserved.
引用
收藏
页码:1 / 12
页数:12
相关论文
共 35 条
[1]   Split-thickness skin graft donor-site morbidity: A systematic literature review [J].
Asuku, Malachy ;
Yu, Tzy-Chyi ;
Yan, Qi ;
Boing, Elaine ;
Hahn, Helen ;
Hovland, Sara ;
Donelan, Matthias B. .
BURNS, 2021, 47 (07) :1525-1546
[2]   Development and validation of the Burnt Hand Outcome Tool (BHOT): A patient-led questionnaire for adults with hand burns [J].
Bache, Sarah E. ;
O'Connor, Edmund Fitzgerald ;
Drake, Paul J. H. ;
Philp, Bruce ;
Dziewulski, Peter .
BURNS, 2018, 44 (08) :2087-2098
[3]   Patient reported outcome measures could help transform healthcare [J].
Black, Nick .
BMJ-BRITISH MEDICAL JOURNAL, 2013, 346
[4]   A BURN SPECIFIC HEALTH SCALE [J].
BLADES, B ;
MELLIS, N ;
MUNSTER, AM .
JOURNAL OF TRAUMA-INJURY INFECTION AND CRITICAL CARE, 1982, 22 (10) :872-875
[5]   MEASURING HEALTH-STATUS AMONG SURVIVORS OF BURN INJURY - REVISIONS OF THE BURN SPECIFIC HEALTH SCALE [J].
BLALOCK, SJ ;
BUNKER, BJ ;
DEVELLIS, RF .
JOURNAL OF TRAUMA-INJURY INFECTION AND CRITICAL CARE, 1994, 36 (04) :508-515
[6]   The Development and Validity of the Adult Burn Outcome Questionnaire Short Form [J].
Chen, Liang ;
Lee, Austin F. ;
Shapiro, Gabriel D. ;
Goverman, Jeremy ;
Faoro, Nicholas ;
Schneider, Jeffrey C. ;
Kazis, Lewis E. ;
Ryan, Colleen M. .
JOURNAL OF BURN CARE & RESEARCH, 2018, 39 (05) :771-779
[7]   Development and clinimetric evaluation of the mouth impairment and disability assessment (MIDA) [J].
Couture, Marie-Andree ;
Calva, Valerie ;
de Oliveira, Ana ;
LaSalle, Leo ;
Forget, Nancy ;
Nedelec, Bernadette .
BURNS, 2018, 44 (04) :980-994
[8]   Reliability & validity of the LIBRE Profile [J].
Dore, Emily C. ;
Marino, Molly ;
Ni, Pengsheng ;
Lomelin-Gascon, Julieta ;
Sonis, Lily ;
Amaya, Flor ;
Ryan, Colleen M. ;
Schneider, Jeffrey C. ;
Jette, Alan M. ;
Kazis, Lewis E. .
BURNS, 2018, 44 (07) :1750-1758
[9]   Use of bilaminar grafts as life-saving interventions for severe burns: A single-center experience [J].
Efanov, Johnny Ionut ;
Tchiloemba, Bianief ;
Duong, Antoine ;
Belisle, Annie ;
Izadpanah, Ali ;
Coeugniet, Edouard ;
Danino, Michel Alain .
BURNS, 2018, 44 (05) :1336-1345
[10]   The lived experience of cardiac disease [J].
Margolis, Stephen A. .
AUSTRALIAN JOURNAL OF GENERAL PRACTICE, 2022, 51 (09) :645-645