Physicians' Knowledge, Attitudes, and Perception Toward Pediatric Palliative Care in Saudi Arabia: A National Exploratory Survey

被引:0
作者
Khan, Saadiya [1 ,3 ]
Sadler, Kim [2 ]
Sidiqui, Khawar [1 ]
AlYami, Hamad [1 ]
AlGarni, Malak [1 ]
Al-Kofide, Amani [1 ]
Podda, Antonello [1 ]
机构
[1] King Faisal Specialist Hosp & Res Ctr, Dept Pediat Hematol, Dept Oncol, Riyadh, Saudi Arabia
[2] King Faisal Specialist Hosp & Res Ctr, Dept Oncol & Liver Dis, Riyadh, Saudi Arabia
[3] King Faisal Specialist Hosp & Res Ctr, Dept Pediat Hematol Oncol, MBC 53, Riyadh, Saudi Arabia
来源
PALLIATIVE MEDICINE REPORTS | 2023年 / 4卷 / 01期
关键词
pediatric palliative care; physician attitude and knowledge; Saudi Arabia; CHILDREN; CANCER; COUNTRIES; DISTRESS; NEED;
D O I
10.1089/pmr.2023.0010
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Pediatric palliative care (PPC) helps maintain the quality of life for both children and their families. It has been identified as an important goal within the global health agenda. In Saudi Arabia, the discipline remains in its infancy, as illustrated by the absence of PPC programs in academic and health care institutions.Aim: The aim was to conduct a pilot study assessing physicians' knowledge, attitudes, and perceptions toward PPC.Method: Data were gathered through a self-administered questionnaire sent to physicians working in Saudi Arabia.Results: One hundred twelve completed the survey (male 54.2%, n = 50). A total of 40.8% (n = 42) had 20 years or more of experience, 42.9% (n = 48) were from the hematology-oncology specialty, and 68.5% (n = 74) received no training in PPC. Half suggested that children should be informed of their condition but mostly when reaching 12 or 15 years of age. Various physicians reported that the most appropriate time to discuss a transition to palliative care goals is when diagnosing an incurable condition or when despite all efforts, a condition continues to progress and death is expected.Conclusion: Multiple gaps were identified. PPC basic concepts should be included in the formal medical curriculum (e.g., pain management, communication, and ethical considerations at the end of life). There is also a significant need to develop further both primary and specialized palliative care.
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收藏
页码:185 / 192
页数:8
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