Racial and gender disparities among highly successful medical crowdfunding campaigns

被引:11
作者
Davis, Aaron Renee [1 ]
Elbers, Shauna K. [2 ]
Kenworthy, Nora [3 ]
机构
[1] Univ Washington, Sch Publ Hlth, Dept Epidemiol, UW Box 351619, Seattle, WA 98195 USA
[2] Univ Washington, Sch Interdisciplinary Arts & Sci, 17927 113rd Ave,NBox 358530, Bothell, WA 98011 USA
[3] Univ Washington, Sch Nursing & Hlth Studies, Box 358532,17927 113rd Ave NE, Bothell, WA 98011 USA
基金
美国国家科学基金会;
关键词
Crowdfunding; Healthcare; Social determinants of health; Racial bias; Gender bias; Disparity; Health cost; RACE; ATTITUDES;
D O I
10.1016/j.socscimed.2023.115852
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
There has been growing recognition of the popularity of medical crowdfunding and research documenting how crowdfunding arises from, and contributes to, social and health inequities. While many researchers have sur-mised that racism could well play a role in medical crowdfunding campaign outcomes, research on these dy-namics has been limited. No research to date has examined these dynamics among the most successful medical crowdfunding campaigns, focusing instead on average users' experiences or specific patient subpopulations. This paper analyzes key characteristics and demographics of the 827 most successful medical crowdfunding cam-paigns captured at a point in time in 2020 on the popular site GoFundMe, creating the first demographic archetype of "viral" or highly successful campaigns. We hypothesized that this sample would skew towards whiter, younger populations, more heavily represent men, and reflect critical illnesses and accidents affecting these populations, in addition to having visually appealing, well-crafted storytelling. Analysis supported these hypotheses, showing significant levels of racial and gender disparities among campaigners. While white men had the greatest representation, Black and Asian users, and black women in particular, were highly underrepresented. Like other studies, we find evidence that racial and gender disparities persist in terms of campaign outcomes as well. Alongside this quantitative analysis, a targeted discourse analysis revealed campaign narratives and comments reinforced racist and sexist tropes of selective deservingness. These findings add to growing calls for more health research into the ways that social media technologies shape health inequities for historically marginalized and disenfranchised populations. In particular, we underscore how successful crowdfunding campaigns, as a both a means of raising funds for health and a broader site of public engagement, may deepen and normalize gendered and racialized inequities. In this way, crowdfunding can be seen as a significant tech-nological amplifier of the fundamental social causes of health disparities.
引用
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页数:9
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