The Illness Experiences of Chinese Adolescent Patients Living with Crohn Disease A Descriptive Qualitative Study

被引：3

作者：

Chen, Lingxi ^{[1
]}

Wang, Danyan ^{[1
]}

Zhou, Yunxian ^{[1
]}

机构：

[1] Zhejiang Chinese Med Univ, Sch Nursing, 548 Binwen Rd, Hangzhou 310053, Zhejiang, Peoples R China

来源：

GASTROENTEROLOGY NURSING | 2023年 / 46卷 / 02期

关键词：

INFLAMMATORY-BOWEL-DISEASE; CHILDREN; DEPRESSION; STRESS; IBD;

D O I：

10.1097/SGA.0000000000000723

中图分类号：

R57 [消化系及腹部疾病];

学科分类号：

摘要：

The purpose of this qualitative study was to explore the illness experience of adolescent patients with Crohn disease and describe the impact of the disease on the everyday lives of these individuals within the Chinese social and cultural context to provide references for targeted interventions for the healthcare team. A descriptive qualitative design was adopted. Purposive sampling was used to select Chinese adolescent patients with Crohn disease to participate in face-to-face in-depth interviews. Data analysis was performed using the conventional content analysis method. Through the analysis of data from 14 adolescent patients with Crohn disease, four themes were formed: (1) I am different from others, (2) I am a burden to my parents, (3) I want to be the master of my own body, and (4) I grow up suffering from illness. Healthcare providers should offer more psychological support to adolescent Crohn disease patients and advise parents to shift more attention to the mental health of their children.

引用

页码：95 / 106

页数：12

共 36 条

[1]

ANESHENSEL CS, 1982, ARCH GEN PSYCHIAT, V39, P1392

[2] School Attendance in Children With Functional Abdominal Pain and Inflammatory Bowel Diseases [J].

Assa, Amit ;

Ish-Tov, Alona ;

Rinawi, Firas ;

Shamir, Raanan .

JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2015, 61 (05) :553-557

[3] To tell or not to tell: A qualitative interview study on disclosure decisions among children with inflammatory bowel disease [J].

Barned, Claudia ;

Stinzi, Alain ;

Mack, David ;

O'Doherty, Kieran C. .

SOCIAL SCIENCE & MEDICINE, 2016, 162 :115-123

[4] Experiences of Chinese patients with Crohn's disease in the self-administration of nasogastric feeding: A descriptive qualitative study [J].

Cai, Qian ;

Li, Fang ;

Zhou, Yunxian .

PLOS ONE, 2018, 13 (07)

[5] Living With Intestinal Failure Caused by Crohn Disease Not Letting the Disease Conquer Life [J].

Carlsson, Eva ;

Persson, Eva .

GASTROENTEROLOGY NURSING, 2015, 38 (01) :12-20

[6]

Carroll Matthew W, 2019, J Can Assoc Gastroenterol, V2, pS49, DOI 10.1093/jcag/gwy056

[7]

Carter Bernie, 2020, Int J Chronic Dis, V2020, P1059025, DOI 10.1155/2020/1059025

[8]

Committee of Pediatric Inflammatory Bowel Disease the Subspecialty Group of Gastroenterology the Society of Pediatrics Chinese Medical Association, 2010, CHINESE J PRACTICAL, V25, P263

[9] Age, Disease Symptoms, and Depression are Associated With Body Image Dissatisfaction in Newly Diagnosed Pediatric Inflammatory Bowel Disease [J].

Cushman, Grace ;

Stolz, Mary Gray ;

Shih, Sharon ;

Listernick, Zoe ;

Talmadge, Clair ;

Gold, Benjamin D. ;

Reed, Bonney .

JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2021, 72 (03) :E57-E62

[10]

Du Y., 2018, WAY YOU WALKED YOUR

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