Health Information-Seeking Behavior of Latino Caregivers of People Living with Dementia: A Mixed-Methods Study

被引:1
作者
Ramirez, Magaly [1 ,8 ]
De Anda, Sofia [1 ]
Jin, Haomiao [2 ,3 ]
Herrera, Joseph R. [4 ]
Wu, Shinyi [5 ,6 ,7 ]
机构
[1] Univ Washington, Dept Hlth Syst & Populat Hlth, Sch Publ Hlth, Seattle, WA USA
[2] Univ Southern Calif, Ctr Econ & Social Res, Los Angeles, CA USA
[3] Univ Surrey, Sch Hlth Sci, Guildford, England
[4] Rancho USC Geriatr Neurobehav & Alzheimers Ctr, Downey, CA USA
[5] Univ Southern Calif, Suzanne Dworak Peck Sch Social Work, Los Angeles, CA USA
[6] Univ Southern Calif, Viterbi Sch Engn, Daniel J Epstein Dept Ind & Syst Engn, Los Angeles, CA USA
[7] Univ Southern Calif, Edward R Roybal Inst Aging, Los Angeles, CA USA
[8] Univ Washington, Hans Rosling Ctr, Dept Hlth Syst & Populat Hlth, Sch Publ Hlth, 3980 15th Ave NE,Fourth Floor,Box 351621, Seattle, WA 98195 USA
基金
美国医疗保健研究与质量局;
关键词
information needs; information barriers; dementia caregiving; qualitative analysis; Hispanic Americans; FAMILY CAREGIVERS; OLDER-ADULTS; NEEDS; CANCER; PREFERENCES;
D O I
10.1177/07334648231163430
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
This mixed-methods study examined the health information-seeking behavior of Latino caregivers of people living with dementia. A structured survey and semi-structured interviews were conducted with 21 Latino caregivers in Los Angeles, California. For triangulation, semi-structured interviews were also conducted with six healthcare and social service providers. The interview transcripts were coded and analyzed via thematic analysis, while the survey data were summarized using descriptive statistics. The results show that caregivers sought information on what changes to expect as dementia progresses. Some desired detailed (limited) information to be better prepared (to worry less). The most common action to address their information needs was searching the Internet. However, those who did this tended to be concerned about the quality of information. Overall, this study sheds light on how much detail Latino caregivers desire in the information they need and the actions they take to obtain this information.
引用
收藏
页码:1738 / 1748
页数:11
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