Standards for psychosocial care in pediatric cancer: adapted proposal for Latin American and Caribbean countries

被引：2

作者：

Trigoso, Viviana ^{[1
,2
,3
]}

Vasquez, Liliana ^{[1
]}

Fuentes-Alabi, Soad ^{[1
]}

Pascual, Claudia ^{[4
]}

Mendez, Teresa ^{[5
]}

Maradiegue, Essy ^{[6
]}

Villegas, Mariela ^{[3
]}

Perina, Elisa ^{[7
]}

Ahumada, Eugenia ^{[8
]}

de Braganca, Joao ^{[9
]}

Zubieta, Marcela ^{[1
,10
,11
]}

Jimenez, Maria del Pilar ^{[12
]}

Bernedo, Hernan ^{[1
,3
,13
]}

Ruda, Lourdes ^{[2
,3
]}

Sierralta, Melisa ^{[3
]}

Motta, Alessandra ^{[1
,4
,14
]}

Rossell, Nuria ^{[1
,5
]}

Vargas, Daniela ^{[3
]}

Salazar, Yurfa ^{[1
,3
]}

Lopez, Marisa ^{[15
]}

Plascencia, Oscar ^{[16
]}

Arita, Armando ^{[16
]}

Molinas, Raquel ^{[17
]}

Salaverria, Carmen ^{[9
,18
]}

Velasquez, Oscar ^{[19
]}

Ugaz, Cecilia ^{[20
]}

机构：

[1] WHO, Pan Amer Hlth Org, Dept Noncommunicable Dis & Mental Hlth, Unit Noncommunicable Dis, Washington, DC 20037 USA

[2] Pontificia Univ Catolica Peru, Dept Psicol, Lima, Peru

[3] Asociac Nacl Psicooncol Peru, Lima, Peru

[4] Pan Amer Hlth Org Peru, Noncommunicable Dis Unit, Lima, Peru

[5] Fdn Natali Dafne Flexer, Buenos Aires, Argentina

[6] Inst Nacl Enfermedades Neoplas, Dept Normat, Cal & Control Nacl Serv Oncol, Lima, Peru

[7] Fac Ciencias Med Minas Gerais, Belo Horizonte, Brazil

[8] Hosp Ninos Roberto Del Rio, Unidad Oncol, Santiago, Chile

[9] Childhood Canc Int, Amsterdam, Netherlands

[10] Childhood Canc Int LATAM, Buenos Aires, Argentina

[11] Fdn Nuestros Hijos, Santiago, Chile

[12] Inst Nacl Salud Nino San Borja, Serv Psicol Sub Unidad Atenc Integral Especializad, Lima, Peru

[13] Inst Nacl Enfermedades Neoplas, Unidad Func Salud Mental Oncol, Lima, Peru

[14] Univ Fed Espirito Santo, Programa PosGrad Psicol, Vitoria, Brazil

[15] Inst Nacl Salud Nino Brena, Serv Psicol, Lima, Peru

[16] Fdn Ninez Primero, San Salvador, El Salvador

[17] Inst Nacl Canc, Asuncion, Paraguay

[18] Fdn Ayudame Vivir, San Salvador, El Salvador

[19] Hosp Nacl Guillermo Almenara, Serv Psicol, Lima, Peru

[20] Inst Nacl Enfermedades Neoplas, Dept Oncol Pediat, Lima, Peru

来源：

REVISTA PANAMERICANA DE SALUD PUBLICA-PAN AMERICAN JOURNAL OF PUBLIC HEALTH | 2023年 / 47卷

关键词：

Child health; psycho-oncology; neoplasms; psychiatric rehabilitation; standards of care; Latin America; Carib-bean region; ONCOLOGY; CHILDREN; INTEGRATION; FAMILIES;

D O I：

10.26633/RPSP.2023.156

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Objective. To highlight the objectives, achievements, challenges, and next steps for the World Health Organi-zation's Global Initiative for Childhood Cancer (GICC) framework, a project designed to improve psychosocial care (PSC) in pediatric cancer centers across Latin America and the Caribbean (LAC). Methods. The project was launched in Peru, the first GICC focal country, in November 2020. The diagnosis phase included a survey and a semistructured interview with health professionals to assess PSC practices in institutions, and a needs assessment survey for caregivers. In the second phase, a strategic plan was developed to address the identified needs, including the adaptation of PSC standards, the establishment of multicenter working groups, the expansion of the proposal, and the development of materials. Results. The study found that PSC was not being adequately provided in accordance with international stan-dards. Six adapted standards were proposed and validated, and more than 50 regional health professionals participated in online activities to support the project. The implementation process is currently ongoing, with the establishment of five multidisciplinary working groups, one regional committee, and the production of 16 technical outputs. Conclusion. This project represents a substantial step forward to improve PSC for pediatric patients with can-cer and their families in LAC countries. The establishment of working groups and evidence-based interventions strengthen the proposal and its implementation. Development of health policies that include PSC according to standards is needed to achieve sustainable results in the quality of life of children with cancer and their families.

引用

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