Developing a psychoeducational programme for caregivers of people with intellectual disability

被引:2
作者
Gordon, Bonita K. [1 ]
Bila, Nontembeko J. [1 ]
机构
[1] Univ Pretoria, Fac Humanities, Dept Social Work & Criminol, Pretoria, South Africa
关键词
intellectual disability; formal paid caregivers; informal unpaid caregivers; psychoeducational programme; caregiver distress; QUALITY-OF-LIFE; CHILDREN; ADULTS; SPECTRUM; AFRICA; IMPACT; PARENT;
D O I
10.4102/ajod.v12i0.1195
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: In the Western Cape, South Africa, a significant number of individuals with intellectual disabilities are cared for by caregivers who receive little or no compensation, education or support. Despite the unique challenges faced by these caregivers, no psychoeducational programmes have been implemented for this particular population. Objectives: The study aimed to examine the factors contributing to caregiver distress and develop a solution in the form of a psychoeducational programme for caregivers. Methods: A mixed-methods research approach was employed. The qualitative phase involved exploratory research to gather fundamental information and gain new insights into caregiver distress. The quantitative phase utilised a 'one-group pre-test, post-test design' with a Likert-scale questionnaire to enable meaningful interpretations and comparisons of the psychoeducational programme's impact and value. The paired t-test was employed to determine significant differences between pre-test and post-test results. Results: The statistical findings demonstrated a significant increase in knowledge, with 99% of respondents indicating a positive impact in reducing caregiver distress and 85% feeling better equipped to care for individuals with intellectual disabilities. Conclusion: The psychoeducational programme developed in this study had a positive effect on reducing caregiver distress. Contribution: This knowledge provides valuable insights for healthcare professionals in designing relevant intervention programmes, offering support and providing resources not only for individuals with intellectual disabilities but also for their caregivers.
引用
收藏
页数:12
相关论文
共 62 条
  • [1] Adnams C., 2016, Understanding intellectual disability: A handbook for families, staff, students and professionals, P8
  • [2] Anney V.N., 2014, J EMERGING TRENDS ED, V5, P272, DOI DOI 10.3109/08941939.2012.723954
  • [3] [Anonymous], 2015, A review of the literature concerning learning disability, challenging behaviour and social work'
  • [4] [Anonymous], 2016, final report, National Disability Authority Research Promotion Scheme 2015
  • [5] Browne J., 2005, Principles of social research: understanding public health
  • [6] Intellectual disability rights and inclusive citizenship in South Africa: What can a scoping review tell us?
    Capri, Charlotte
    Abrahams, Lameze
    McKenzie, Judith
    Coetzee, Ockert
    Mkabile, Siyabulela
    Saptouw, Manuel
    Hooper, Andrew
    Smith, Peter
    Adnams, Colleen
    Swartz, Leslie
    [J]. AFRICAN JOURNAL OF DISABILITY, 2018, 7
  • [7] Coetzee O., 2016, Understanding intellectual disability: A handbook for families, staff, students and professionals, P157
  • [8] Where there is no evidence: implementing family interventions from recommendations in the NICE guideline 11 on challenging behaviour in a South African health service for adults with intellectual disability
    Coetzee, Ockert
    Swartz, Leslie
    Capri, Charlotte
    Adnams, Colleen
    [J]. BMC HEALTH SERVICES RESEARCH, 2019, 19 (1)
  • [9] Creswell J. W., 2011, DESIGNING CONDUCTING
  • [10] The Role of Social Support in Participation Perspectives of Caregivers of Children with Intellectual Disabilities in India and South Africa
    Dada, Shakila
    Bastable, Kirsty
    Halder, Santoshi
    [J]. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2020, 17 (18) : 1 - 18