Chemo assist for children mobile health application to manage chemotherapy-related symptoms in acute leukemia in Indonesia: a user-centered design approach

被引:7
作者
Novrianda, Dwi [1 ]
Herini, Elisabeth Siti [2 ]
Haryanti, Fitri [3 ]
Supriyadi, Eddy [2 ]
Lazuardi, Lutfan [4 ]
机构
[1] Univ Andalas, Fac Nursing, Dept Pediat & Matern Nursing, Padang, Indonesia
[2] Univ Gadjah Mada, Dr Sardjito Hosp, Fac Med Publ Hlth & Nursing, Dept Child Hlth, Yogyakarta, Indonesia
[3] Univ Gadjah Mada, Fac Med Publ Hlth & Nursing, Dept Pediat Matern Nursing, Yogyakarta, Indonesia
[4] Univ Gadjah Mada, Fac Med Publ Hlth & Nursing, Dept Hlth Policy & Management, Yogyakarta, Indonesia
关键词
Chemotherapy-related symptoms; Mobile health; Literature review; User-centered design; Symptom management; ACUTE LYMPHOBLASTIC-LEUKEMIA; CANCER; GUIDELINE; PREVENTION; NAUSEA; IMPLEMENTATION; ADOLESCENTS; RECIPIENTS; ONCOLOGY; PROGRAM;
D O I
10.1186/s12887-023-04076-0
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
BackgroundA mobile health (mHealth) application can encourage parents and pediatric patients to be involved in caring for their child's health condition by providing the ability to identify and actively manage chemotherapy-related symptoms in their child. Several monitoring systems available today are diverse in features and system basis. This study aimed to develop and trial the Chemo Assist for Children (CAC) mHealth application for symptom management in children with acute lymphoblastic leukemia (ALL).MethodsIn this study, the development of the CAC application went through multiple phases and methods. Study phases included: (1) development of the application's feature based on the need assessment, (2) creation of content of application based on literature review, (3) develop prototyping of CAC, (4) expert review and feedback on the application content, (5) usability testing by targeted end-user.ResultsBased on need assessment, it was determined that parents with leukemia children were interested in symptom management of chemotherapy and preferred mobile applications. Therefore, a mHealth application was designed to include features to identify symptoms and provide recommendation strategies to manage the symptom. Usability evaluation by end-user revealed that mHealth is a valid, accessible, and appropriate application for users.ConclusionsThe CAC mHealth application developed can meet the needs of technology users to identify symptoms and manage chemotherapy-related symptoms in children with ALL. The CAC mHealth application can accommodate data not recorded at out-of-hospital care, increase the independence of symptom management, and improve communication between parents of children with ALL and health workers.
引用
收藏
页数:16
相关论文
共 44 条
[11]   Initial development of Supportive care Assessment, Prioritization and Recommendations for Kids (SPARK), a symptom screening and management application [J].
Cook, Sadie ;
Vettese, Emily ;
Soman, Dilip ;
Hyslop, Shannon ;
Kuczynski, Susan ;
Spiegler, Brenda ;
Davis, Hailey ;
Duong, Nathan ;
Wai, Stacee Ou ;
Golabek, Robert ;
Golabek, Patryk ;
Antoszek-Rallo, Adam ;
Schechter, Tal ;
Dupuis, L. Lee ;
Sung, Lillian .
BMC MEDICAL INFORMATICS AND DECISION MAKING, 2019, 19 (1)
[12]   The Effectiveness of Psychosocial Interventions for Psychological Outcomes in Pediatric Oncology: A Systematic Review [J].
Coughtrey, Anna ;
Millington, Amy ;
Bennett, Sophie ;
Christie, Deborah ;
Hough, Rachael ;
Su, Merina T. ;
Constantinou, Matthew P. ;
Shafran, Roz .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2018, 55 (03) :1004-1017
[13]   Guideline for the prevention and treatment of anticipatory nausea and vomiting due to chemotherapy in pediatric cancer patients [J].
Dupuis, L. Lee ;
Robinson, Paula D. ;
Boodhan, Sabrina ;
Holdsworth, Mark ;
Portwine, Carol ;
Gibson, Paul ;
Phillips, Robert ;
Maan, Cathy ;
Stefin, Nancy ;
Sung, Lillian .
PEDIATRIC BLOOD & CANCER, 2014, 61 (08) :1506-1512
[14]   Guideline for the prevention of acute nausea and vomiting due to antineoplastic medication in pediatric cancer patients [J].
Dupuis, L. Lee ;
Boodhan, Sabrina ;
Holdsworth, Mark ;
Robinson, Paula D. ;
Hain, Richard ;
Portwine, Carol ;
O'Shaughnessy, Erin ;
Sung, Lillian .
PEDIATRIC BLOOD & CANCER, 2013, 60 (07) :1073-1082
[15]   Guideline for the Treatment of Breakthrough and the Prevention of Refractory Chemotherapy-Induced Nausea and Vomiting in Children With Cancer [J].
Flank, Jacqueline ;
Robinson, Paula D. ;
Holdsworth, Mark ;
Phillips, Robert ;
Portwine, Carol ;
Gibson, Paul ;
Maan, Cathy ;
Stefin, Nancy ;
Sung, Lillian ;
Dupuis, L. Lee .
PEDIATRIC BLOOD & CANCER, 2016, 63 (07) :1144-1151
[16]   Pediatric Education Discharge Support Strategies for Newly Diagnosed Children With Cancer [J].
Hockenberry, Marilyn ;
Haugen, Maureen ;
Slaven, Abigail ;
Skeens, Micah ;
Patton, Lindsey ;
Montgomery, Kathleen ;
Trimble, Katherine ;
Coyne, Kelly ;
Hancock, Donna ;
Ahmad, Amer ;
Daut, Emily ;
Glover, Leslie ;
Brown, Lauren ;
St Pierre, Sherryann ;
Shay, April ;
Maloney, Jacqueline ;
Burke, Michelle ;
Hatch, Daniel ;
Arthur, Megan .
CANCER NURSING, 2021, 44 (06) :E520-E530
[17]   Validation of the Proxy Version of Symptom Screening in Pediatrics Tool in Children Receiving Cancer Treatments [J].
Hyslop, Shannon ;
Dupuis, L. Lee ;
Baggott, Christina ;
Dix, David ;
Gibson, Paul ;
Kuczynski, Susan ;
Johnston, Donna L. ;
Orsey, Andrea ;
Portwine, Carol ;
Price, Vicky ;
Spiegler, Brenda ;
Tomlinson, Deborah ;
Vanan, Magimairajan ;
Tomlinson, George A. ;
Sung, Lillian .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2018, 56 (01) :107-112
[18]  
Ikatan Dokter Anak Indonesia, 2011, REKOMENDASI IKATAN D
[19]   Implementation and preliminary effectiveness of a real-time pain management smartphone app for adolescents with cancer: A multicenter pilot clinical study [J].
Jibb, Lindsay A. ;
Stevens, Bonnie J. ;
Nathan, Paul C. ;
Seto, Emily ;
Cafazzo, Joseph A. ;
Johnston, Donna L. ;
Hum, Vanessa ;
Stinson, Jennifer N. .
PEDIATRIC BLOOD & CANCER, 2017, 64 (10)
[20]  
Kay M., 2011, GLOB OBS EHEALTH SER, V64, P66, DOI DOI 10.4258/HIR.2012.18.3.231