Long-term outcomes and life-impacts of necrotizing enterocolitis: A survey of survivors and parents

被引：10

作者：

Canvasser, Jennifer ^{[1
]}

Patel, Ravi Mangal ^{[2
]}

Pryor, Erin ^{[1
]}

Green, Linseigh ^{[1
]}

Hintz, Susan R. ^{[3
]}

Fagan, Maureen ^{[4
]}

Harrison, James D. ^{[5
]}

机构：

[1] NEC Soc, 140 B St Ste 5 128, Davis, CA 95616 USA

[2] Emory Univ, Sch Med, Div Neonatol, Dept Pediat, Atlanta, GA USA

[3] Stanford Univ, Pediat Neonatal & Dev Med, Palo Alto, CA USA

[4] Univ Miami Hlth Syst, Miami, FL USA

[5] Univ Calif San Francisco, San Francisco, CA USA

来源：

SEMINARS IN PERINATOLOGY | 2023年 / 47卷 / 01期

基金：

美国医疗保健研究与质量局;

关键词：

BIRTH-WEIGHT INFANTS; DISPARITIES;

D O I：

10.1016/j.semperi.2022.151696

中图分类号：

R71 [妇产科学];

学科分类号：

100211 ;

摘要：

Necrotizing enterocolitis (NEC) is a devastating intestinal disease that primarily affects pre-mature infants. Necrotizing enterocolitis is associated with adverse two-year outcomes, yet limited research has evaluated the impact of NEC on long-term complications and qual-ity of life in children older than two years. We conducted a survey to characterize the long-term impact of NEC on physical and mental health, social experiences, and quality of life as self-reported by adult NEC survivors and parents of children who survived NEC. To our knowledge, this is the first study that describes the lived experience of NEC survivors and parents of children affected by NEC to understand their experience years after the original diagnosis. Our survey results describe that NEC survivors and parents of children affected by NEC experience long-term complications that impact their physical and mental health, social experiences, and quality of life. (c) 2022 Elsevier Inc. All rights reserved.

引用

页数：8

共 19 条

[1] Necrotizing Enterocolitis and Neurodevelopmental Outcome [J].