Caring for a Child with Chronic Illness: Effect on Families and Siblings

被引:2
作者
Huth, Kathleen [1 ,2 ]
Frankel, Hilary [3 ,4 ]
Cook, Stacey [1 ,2 ]
Samuels, Ronald C. [3 ,4 ]
机构
[1] Boston Childrens Hosp, Boston, MA 02115 USA
[2] Harvard Med Sch, Boston, MA 02115 USA
[3] Childrens Hosp Montefiore, Bronx, NY USA
[4] Albert Einstein Coll Med, Bronx, NY USA
关键词
HEALTH-CARE NEEDS; QUALITY-OF-LIFE; MEDICAL COMPLEXITY; ADJUSTMENT; CAREGIVERS; EXPERIENCES; PERSPECTIVES; INSURANCE; PATTERNS; YOUTH;
D O I
10.1542/pir.2022-005649
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Almost 20% of children have some form of chronic illness. Chronic illness in children can have a profound effect on their families and siblings in a variety of ways. Recognizing these potential impacts and knowing some ways to mitigate them can be of great help to your patients and their families. OBJECTIVES After completing this article, readers should be able to: 1. List the financial, biological, and psychosocial effects on a family with a child with chronic illness. 2. Describe the unique effect on siblings of a child with chronic illness. 3. List the role of pediatricians in supporting family members of a child with chronic illness. © 2023 American Academy of Pediatrics. All rights reserved.
引用
收藏
页码:393 / 402
页数:10
相关论文
共 70 条
  • [1] Psychosocial adjustment of siblings of children with cancer: a systematic review
    Alderfer, Melissa A.
    Long, Kristin A.
    Lown, E. Anne
    Marsland, Anna L.
    Ostrowski, Nancy L.
    Hock, Janet M.
    Ewing, Linda J.
    [J]. PSYCHO-ONCOLOGY, 2010, 19 (08) : 789 - 805
  • [2] American Academy of Pediatrics, CHRON COND
  • [3] Children With Medical Complexity And Medicaid: Spending And Cost Savings
    Berry, Jay G.
    Hall, Matt
    Neff, John
    Goodman, Denise
    Cohen, Eyal
    Agrawal, Rishi
    Kuo, Dennis
    Feudtner, Chris
    [J]. HEALTH AFFAIRS, 2014, 33 (12) : 2199 - 2206
  • [4] Paediatric life-limiting conditions: Coping and adjustment in siblings
    Brennan, Cathy
    Hugh-Jones, Siobhan
    Aldridge, Jan
    [J]. JOURNAL OF HEALTH PSYCHOLOGY, 2013, 18 (06) : 813 - 824
  • [6] Caregiver Burden in Caregivers of Children With Special Health Care Needs and Association With Chronic Pain
    Camelo Castillo, Wendy
    Onasanya, Oluwadamilola
    dosReis, Susan
    Hogans, Beth
    Reeves, Gloria
    [J]. MEDICAL CARE, 2022, 60 (05) : 368 - 374
  • [7] Caring for the Caregiver (C4C): An Integrated Stepped Care Model for Caregivers of Children With Medical Complexity
    Cardenas, Analyssa
    Esser, Kayla
    Wright, Elisabeth
    Netten, Kathy
    Edwards, Ashley
    Rose, Julie
    Vigod, Simone
    Cohen, Eyal
    Orkin, Julia
    [J]. ACADEMIC PEDIATRICS, 2023, 23 (02) : 236 - 243
  • [8] Chan Yoke Hwee, 2019, Glob Pediatr Health, V6, p2333794X18823000, DOI 10.1177/2333794X18823000
  • [9] Patterns and Costs of Health Care Use of Children With Medical Complexity
    Cohen, Eyal
    Berry, Jay G.
    Camacho, Ximena
    Anderson, Geoff
    Wodchis, Walter
    Guttmann, Astrid
    [J]. PEDIATRICS, 2012, 130 (06) : E1463 - E1470
  • [10] Children With Medical Complexity: An Emerging Population for Clinical and Research Initiatives
    Cohen, Eyal
    Kuo, Dennis Z.
    Agrawal, Rishi
    Berry, Jay G.
    Bhagat, Santi K. M.
    Simon, Tamara D.
    Srivastava, Rajendu
    [J]. PEDIATRICS, 2011, 127 (03) : 529 - 538