Development and validation of a Systemic Sclerosis Health Literacy Scale

被引:5
作者
Zhuang, Meng [1 ,2 ]
Li, Cheng-Cheng [1 ,2 ]
Chen, Shan-Yu [3 ]
Tu, Xin-Hua [1 ,2 ]
Liu, Lian [1 ,2 ]
Chen, Xi-Lai [4 ]
Xu, Cheng-Wei [1 ,2 ]
Wang, Jing [1 ,2 ]
机构
[1] Anhui Med Univ, Sch Publ Hlth, Dept Epidemiol & Biostat, Hefei, Peoples R China
[2] Anhui Med Univ, Med Data Proc Ctr, Hefei, Peoples R China
[3] Anhui Med Univ, Affiliated Hosp 1, Dept Rheumatol & Immunol, Hefei, Peoples R China
[4] Anhui Univ Finance & Econ, Coll Stat & Appl Math, Dept Stat, Bengbu, Peoples R China
基金
美国国家科学基金会;
关键词
systemic sclerosis; health literacy; scale; chronic disease; populations; PATIENT; ADULTS; ADHERENCE; OUTCOMES; CARE;
D O I
10.3389/fpubh.2023.1038019
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background and aimHealth literacy levels are strongly associated with clinical outcomes and quality of life in patients with chronic diseases, and patients with limited health literacy often require more medical care and achieve poorer clinical outcomes. Among the large number of studies on health literacy, few studies have focused on the health literacy of people with systemic sclerosis (SSc), and there is no specific tool to measure health literacy in this group. Therefore, this study plans to develop a health literacy scale for patients with SSc. MethodsThis study included 428 SSc patients from the outpatient and inpatient departments of the Department of Rheumatology and Immunology, the first affiliated Hospital of Anhui Medical University and the first affiliated Hospital of University of Science and Technology of China. The formulation of the scale was completed by forming the concept of health literacy of SSc patients, establishing the item pool, screening items, and evaluating reliability and validity. Classical measurement theory was used to screen items, factor analysis was used to explore the construct validity of the scale, and Cronbach's alpha coefficient was used to assess the internal consistency. ResultsOur study population was predominantly middle-aged women, with a male to female ratio of 1:5.7 and a mean age of 51.57 +/- 10.99. A SSc Health Literacy scale with 6 dimensions and 30 items was developed. The six dimensions are clinic ability, judgment/evaluation information ability, access to information ability, social support, treatment compliance and application information ability. The Cronbach's alpha coefficient of the scale is 0.960, retest reliability is 0.898, split-half reliability is 0.953, content validity is 0.983, which has good reliability and validity. ConclusionThe Systemic Sclerosis Health Literacy Scale may become a valid tool to evaluate the health literacy level of patients with SSc.
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页数:15
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