Symptom Science in Kidney Disease

被引:0
|
作者
Wulczyn, Kendra E. [1 ,2 ]
Forfang, Derek [3 ]
Kalim, Sahir [4 ,5 ]
机构
[1] Massachusetts Gen Hosp, Dept Med, Div Nephrol, Boston, MA USA
[2] Harvard Med Sch, Boston, MA USA
[3] Natl Forum ESRD Networks Kidney Patient Advisory C, Burlingame, CA USA
[4] Natl Kidney Fdn Publ Policy Comm, New York, NY USA
[5] 165 Cambridge St Suite 302, Boston, MA 02114 USA
来源
ADVANCES IN KIDNEY DISEASE AND HEALTH | 2024年 / 31卷 / 01期
关键词
Symptom science; Patient engagement; Unpleasant symptoms; Chronic kidney disease; Quality of life; QUALITY-OF-LIFE; PATIENT-REPORTED OUTCOMES; NATIONAL-INSTITUTES; PHYSICAL SYMPTOMS; CLINICAL-PRACTICE; DIALYSIS PATIENTS; DEPRESSION; CLUSTERS; PREVALENCE; MANAGEMENT;
D O I
10.1053/j.akdh.2023.09.002
中图分类号
R5 [内科学]; R69 [泌尿科学(泌尿生殖系疾病)];
学科分类号
1002 ; 100201 ;
摘要
Physical and emotional symptoms are highly prevalent among patients with kidney disease and are directly linked to impaired health -related quality of life. Symptom science is a field of research aimed at advancing knowledge of the holistic mechanisms driving symptoms, how best to assess symptoms accurately, and developing novel and patient -centered approaches to symptom management. Patients with kidney disease have identified symptom science as a top research priority, and opportunities abound for ongoing patient engagement in symptom -related research efforts and clinical care. This review describes the burden of symptoms experienced by patients with kidney disease, explores the spectrum of patient engagement in symptom care and research, and discusses approaches for symptom assessment and management, taking into consideration the multitude of factors that may contribute to symptoms. Q 2023 by the National Kidney Foundation, Inc. All rights reserved.
引用
收藏
页码:13 / 20
页数:8
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