Brain-Computer Interfaces, Completely Locked-In State in Neurodegenerative Diseases, and End-of-Life Decisions

被引：2

作者：

Poppe, Christopher ^{[1
]}

Elger, Bernice S. ^{[1
,2
]}

机构：

[1] Univ Basel, Inst Biomed Ethics, Bernoullistr 28, CH-4056 Basel, Switzerland

[2] Ctr Legal Med Geneva & Lausanne, Geneva, Switzerland

来源：

JOURNAL OF BIOETHICAL INQUIRY | 2024年 / 21卷 / 01期

关键词：

Brain; computer interfaces; Assisted suicide; Withdrawing treatment; End of life; ALS; Locked-in state; AMYOTROPHIC-LATERAL-SCLEROSIS; COGNITIVE IMPAIRMENT; REEMERGENT AGENCY; ALS; PATIENT;

D O I：

10.1007/s11673-023-10256-5

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

In the future, policies surrounding end-of-life decisions will be faced with the question of whether competent people in a completely locked-in state should be enabled to make end-of-life decisions via brain-computer interfaces (BCI). This article raises ethical issues with acting through BCIs in the context of these decisions, specifically self-administration requirements within assisted suicide policies. We argue that enabling patients to end their life even once they have entered completely locked-in state might, paradoxically, prolong and uphold their quality of life.

引用

页码：19 / 27

页数：9

共 28 条

[1] Brain–Computer Interfaces, Completely Locked-In State in Neurodegenerative Diseases, and End-of-Life Decisions
Christopher Poppe
Bernice S. Elger
Journal of Bioethical Inquiry, 2024, 21 : 19 - 27
[2] Brain-computer interfaces in the completely locked-in state and chronic stroke
Chaudhary, U.
Birbaumer, N.
Ramos-Murguialday, A.
BRAIN-COMPUTER INTERFACES: LAB EXPERIMENTS TO REAL-WORLD APPLICATIONS, 2016, 228 : 131 - 161
[3] A review on the performance of brain-computer interface systems used for patients with locked-in and completely locked-in syndrome
Rezvani, Sanaz
Hosseini-Zahraei, S. Hooman
Tootchi, Amirreza
Guger, Christoph
Chaibakhsh, Yasmin
Saberi, Alia
Chaibakhsh, Ali
COGNITIVE NEURODYNAMICS, 2024, 18 (04) : 1419 - 1443
[4] Applications of brain-computer interfaces in neurodegenerative diseases
Tayebi, Hossein
Azadnajafabad, Sina
Maroufi, Seyed Farzad
Pour-Rashidi, Ahmad
Khorasanizadeh, MirHojjat
Faramarzi, Sina
Slavin, Konstantin V.
NEUROSURGICAL REVIEW, 2023, 46 (01)
[5] Applications of brain-computer interfaces in neurodegenerative diseases
Hossein Tayebi
Sina Azadnajafabad
Seyed Farzad Maroufi
Ahmad Pour-Rashidi
MirHojjat Khorasanizadeh
Sina Faramarzi
Konstantin V. Slavin
Neurosurgical Review, 46
[6] Brain-Computer interfaces for communication: preferences of individuals with locked-in syndrome, caregivers and researchers
Branco, Mariana P.
Pels, Elmar G. M.
Nijboer, Femke
Ramsey, Nick F.
Vansteensel, Mariska J.
DISABILITY AND REHABILITATION-ASSISTIVE TECHNOLOGY, 2023, 18 (06) : 963 - 973
[7] EEG-based Brain-Computer Interface for Real-Time Communication of Patients in Completely Locked-in State
Han, Chang-Hee
Im, Chang-Hwan
2018 6TH INTERNATIONAL CONFERENCE ON BRAIN-COMPUTER INTERFACE (BCI), 2018, : 101 - 102
[8] Locked Out: Ignorance and Responsibility in Brain-Computer Interface Communication in Locked-in Syndrome
Johansson, Veronica
Soekadar, Surjo R.
Clausen, Jens
CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS, 2017, 26 (04) : 555 - 576
[9] Boosting brain-computer interfaces with functional electrical stimulation: potential applications in people with locked-in syndrome
Canny, Evan
Vansteensel, Mariska J.
van der Salm, Sandra M. A.
Mueller-Putz, Gernot R.
Berezutskaya, Julia
JOURNAL OF NEUROENGINEERING AND REHABILITATION, 2023, 20 (01)
[10] Fully Implanted Brain-Computer Interface in a Locked-In Patient with ALS
Vansteensel, Mariska J.
Pels, Elmar G. M.
Bleichner, Martin G.
Branco, Mariana P.
Denison, Timothy
Freudenburg, Zachary V.
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Leinders, Sacha
Ottens, Thomas H.
Van den Boom, Max A.
Van Rijen, Peter C.
Aarnoutse, Erik J.
Ramsey, Nick F.
NEW ENGLAND JOURNAL OF MEDICINE, 2016, 375 (21): : 2060 - 2066

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