Unmet Needs and Care Delivery Gaps Among Rural Cancer Survivors

被引:4
作者
Stout, Nicole L. [1 ,2 ,6 ]
Boatman, Dannell [1 ]
Rice, Madeline [3 ]
Branham, Emelia [3 ]
Miller, Meadow [4 ]
Salyer, Rachel [5 ]
机构
[1] West Virginia Univ, Sch Med, Dept Canc Prevent & Control, Morgantown, WV USA
[2] West Virginia Univ, Sch Publ, Dept Hlth Policy Management & Leadership, Morgantown, WV USA
[3] West Virginia Univ, Sch Med, Div Phys Therapy, Morgantown, WV USA
[4] West Virginia Univ, Morgantown, WV USA
[5] West Virginia Univ, Sch Med, Dept Internal Med, Morgantown, WV USA
[6] West Virginia Univ, WVU Canc Inst, Sch Med,Hlth Policy Management & Leadership, Sch Publ Hlth,Dept Canc Prevent & Control, POB 9350, Morgantown, WV 26506 USA
来源
JOURNAL OF PATIENT EXPERIENCE | 2024年 / 11卷
关键词
cancer survivorship; chronic care; mixed methods; rural health; SUPPORTIVE CARE; DISABILITY; COMPONENT; ROLES;
D O I
10.1177/23743735241239865
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Community-based healthcare delivery systems frequently lack cancer-specific survivorship support services. This leads to a burden of unmet needs that is magnified in rural areas. Using sequential mixed methods we assessed unmet needs among rural cancer survivors diagnosed between 2015 and 2021. The Supportive Care Needs Survey (SCNS) assessed 5 domains; Physical and Daily Living, Psychological, Support and Supportive Services, Sexual, and Health Information. Needs were analyzed across domains by cancer type. Survey respondents were recruited for qualitative interviews to identify care gaps. Three hundred and sixty two surveys were analyzed. Participants were 85% White (n = 349) 65% (n = 234) female and averaged 2.03 years beyond cancer diagnosis. Nearly half (49.5%) of respondents reported unmet needs, predominantly in physical, psychological, and health information domains. Needs differed by stage of disease. Eleven interviews identified care gap themes regarding; Finding Support and Supportive Services and Health Information regarding Care Delivery and Continuity of Care. Patients experience persistent unmet needs after a cancer diagnosis across multiple functional domains. Access to community-based support services and health information is lacking. Community based resources are needed to improve access to care for long-term cancer survivors.
引用
收藏
页数:12
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