"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

被引：272

作者：

Bury, Simon M. ^{[1
]}

Jellett, Rachel ^{[1
]}

Spoor, Jennifer R. ^{[2
]}

Hedley, Darren ^{[1
]}

机构：

[1] La Trobe Univ, Olga Tennison Autism Res Ctr, Sch Psychol & Publ Hlth, Melbourne, Vic 3086, Australia

[2] La Trobe Univ, Coll Arts Social Sci & Commerce, La Trobe Business Sch, Melbourne, Vic, Australia

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 02期

关键词：

Autism; Terminology; Autism identity; Label preference; Person-first; Identity-first; PERSON-1ST LANGUAGE; DISORDER; DSM-5;

D O I：

10.1007/s10803-020-04425-3

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

引用

页码：677 / 687

页数：11

共 32 条

[1] American Psychiatric Association, 2013, Diagnostic and Statistical Manual of Mental Disorders DSM-5, V5th ed., DOI [10.1176/appi.books.9780890425596, DOI 10.1176/APPI.BOOKS.9780890425596]
[2] #SaytheWord: A Disability Culture Commentary on the Erasure of "Disability"
Andrews, Erin E.
Forber-Pratt, Anjali J.
Mona, Linda R.
Lund, Emily M.
Pilarski, Carrie R.
Balter, Rochelle
[J]. REHABILITATION PSYCHOLOGY, 2019, 64 (02) : 111 - 118
[3] [Anonymous], 2012, PUBL MAN AM PSYCH AS, V6th
[4] Cohort profile: the Australian Longitudinal Study of Adults with Autism (ALSAA)
Arnold, Samuel
Foley, Kitty-Rose
Hwang, Ye In Jane
Richdale, Amanda L.
Uljarevic, Mirko
Lawson, Lauren P.
Cai, Ru Ying
Falkmer, Torbjorn
Falkmer, Marita
Lennox, Nick G.
Urbanowicz, Anna
Trollor, Julian
[J]. BMJ OPEN, 2019, 9 (12):
[5] From Cure to Community: Transforming Notions of Autism
Bagatell, Nancy
[J]. ETHOS, 2010, 38 (01) : 33 - 55
[6] Braun V., 2006, QUAL RES PSYCHOL, V3, P77, DOI [DOI 10.1191/1478088706QP063OA, 10.1191/1478088706qp063oa]
[7] Person-first language: are we practicing what we preach?
Crocker, Amy F.
Smith, Susan N.
[J]. JOURNAL OF MULTIDISCIPLINARY HEALTHCARE, 2019, 12 : 125 - 129
[8] Neurodiversity: An insider's perspective
den Houting, Jacquiline
[J]. AUTISM, 2019, 23 (02) : 271 - 273
[9] The Social Identity Approach to Disability: Bridging Disability Studies and Psychological Science
Dirth, Thomas P.
Branscombe, Nyla R.
[J]. PSYCHOLOGICAL BULLETIN, 2018, 144 (12) : 1300 - 1324
[10] Person-First and Identity-First Language Developing Psychologists' Cultural Competence Using Disability Language
Dunn, Dana S.
Andrews, Erin E.
[J]. AMERICAN PSYCHOLOGIST, 2015, 70 (03) : 255 - 264

← 1 2 3 4 →