Comparing direct-to-consumer genetic testing services in English, Japanese, and Chinese websites

被引:2
|
作者
Nagai, Kentaro [1 ]
Tanaka, Mikihito [2 ]
Marcon, Alessandro R. [3 ]
Shineha, Ryuma [4 ]
Tokunaga, Katsushi [5 ]
Caulfield, Timothy [3 ]
Takezawa, Yasuko [6 ]
机构
[1] Meiji Univ, Sch Informat & Commun, Tokyo 1018301, Japan
[2] Waseda Univ, Sch Polit Sci & Econ, Tokyo 1690051, Japan
[3] Univ Alberta, Hlth Law Inst, Fac Law, Edmonton, AB, Canada
[4] Osaka Univ, Res Ctr Eth Legal & Social Issues, Osaka 5650871, Japan
[5] Natl Ctr Global Hlth & Med, Res Inst, Tokyo 1628655, Japan
[6] Kyoto Univ, Inst Res Humanities, Kyoto 6068265, Japan
关键词
direct-to-consumer genetic testing; media; culture; INCIDENTAL FINDINGS; GENOME; LEGAL; SCIENCE; RISK; RECOMMENDATIONS; CREDIBILITY; MEDIA; TRUST;
D O I
10.1537/ase.220905
中图分类号
Q98 [人类学];
学科分类号
030303 ;
摘要
Direct-to-consumer genetic testing (DTC-GT) has rapidly become available and affordable throughout developed countries. However, comparative research on DTC-GT services beyond Western countries has remained scarce, particularly in East Asian countries such as Japan and China. Hence, this study's hypothesis is that although DTC-GT services in three languages might utilize the same underlying testing technology, such services are likely to represent the social, economic, and political characteristics of each country. For the study, a total of 267 websites (182 English, 32 Japanese, and 53 Chinese) were analyzed and coded reflexively into five categories for content analysis before interpretation using cluster and factor analyses. The results demonstrated variation between the three languages that reflected their respective consumer cultures: English, Chinese, and Japanese genetic testing websites focused on empowerment and ancestry; cultural values, especially familism; and health and beauty, respectively.
引用
收藏
页码:3 / 13
页数:11
相关论文
共 50 条
  • [1] Direct-to-consumer genetic testing
    Henegan, John C., Jr.
    Robin, Nathaniel H.
    CURRENT OPINION IN PEDIATRICS, 2010, 22 (06) : 685 - 686
  • [2] Direct-to-Consumer Genetic Testing
    Bates, Mary
    IEEE PULSE, 2018, 9 (06) : 11 - 14
  • [3] Direct-to-consumer genetic testing
    Cecile, A.
    Janssens, J. W.
    FEBS JOURNAL, 2012, 279 : 325 - 325
  • [4] Direct-to-consumer genetic testing
    不详
    LANCET, 2012, 380 (9837): : 76 - 76
  • [5] Direct-to-Consumer Testing 2.0: Emerging Models of Direct-to-Consumer Genetic Testing
    Allyse, Megan A.
    Robinson, David H.
    Ferber, Matthew J.
    Sharp, Richard R.
    MAYO CLINIC PROCEEDINGS, 2018, 93 (01) : 113 - 120
  • [6] Direct-to-consumer genetic testing services: what are the medical benefits?
    Thierry Frebourg
    European Journal of Human Genetics, 2012, 20 : 483 - 483
  • [7] Control of direct-to-consumer genetic testing
    不详
    LANCET, 2008, 372 (9647): : 1360 - 1360
  • [8] Direct-to-consumer genetic laboratory testing
    Popovich, Bradley
    CYTOGENETIC AND GENOME RESEARCH, 2007, 116 (04)
  • [9] Direct-to-consumer advertising of genetic testing
    Levin, M
    JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2003, 289 (01): : 45 - 46
  • [10] The ethics of direct-to-consumer genetic testing
    Udesky, Laurie
    LANCET, 2010, 376 (9750): : 1377 - 1378