The feasibility and acceptability of mobile ecological momentary assessment to evaluate sleep, family functioning, and affect in patients with pediatric craniopharyngioma

被引：1

作者：

Al Ghriwati, Nour ^{[1
,5
]}

Winter, Marcia ^{[2
]}

Semko, Joshua ^{[3
]}

Merchant, Thomas E. ^{[4
]}

Crabtree, Valerie McLaughlin ^{[4
]}

机构：

[1] Frederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA

[2] Virginia Commonwealth Univ, Dept Psychol, Richmond, VA USA

[3] Univ Mississippi, Dept Psychol, University, MS USA

[4] St Jude Childrens Res Hosp, Memphis, TN USA

[5] NCI, Pediat Oncol Branch, NIH, Rockville, MD 20850 USA

来源：

JOURNAL OF PSYCHOSOCIAL ONCOLOGY | 2024年 / 42卷 / 02期

关键词：

affect; cancer; family; pediatrics; psychology; sleep; COGNITIVE-BEHAVIORAL THERAPY; CHILDREN; ADOLESCENTS; DIARIES; HEALTH; YOUTH; SYMPTOMS;

D O I：

10.1080/07347332.2023.2231412

中图分类号：

B84 [心理学];

学科分类号：

04 ; 0402 ;

摘要：

Purpose/ObjectivesWe aimed to assess the feasibility and acceptability of mobile ecological momentary assessment (mEMA) for youth with craniopharyngioma and evaluate daily associations among family functioning, affect, and sleep difficulties.Design/Research ApproachYouth completed two mEMA diaries per day for one week.Sample/ParticipantsThirty-nine youth who underwent surgery and proton radiotherapy (when indicated) for craniopharyngioma.Methods/Methodological ApproachDescriptive statistics and multi-level modeling were used to examine feasibility and acceptability of mEMA and daily associations among family functioning, affect, and sleep.FindingsYouth reported satisfaction and minimal burden from completing daily mEMA diaries. Poorer family functioning was not related to lower sleep efficiency.Conclusions/InterpretationmEMA is an acceptable and feasible method for evaluating sleep and related variables in children and adolescents with craniopharyngioma.Implications for Psychosocial Providers or PolicyResults highlight the utility of gathering mEMA data in youth at elevated risk for sleep difficulties as a function of their illness/treatment.

引用

页码：159 / 174

页数：16

共 31 条

[21] Are parenting behaviors associated with child sleep problems during treatment for acute lymphoblastic leukemia?
McCarthy, Maria C.
Bastiani, Jessica
Williams, Lauren K.
[J]. CANCER MEDICINE, 2016, 5 (07): : 1473 - 1480
[22] Moturi Sricharan, 2010, Psychiatry (Edgmont), V7, P24
[23] A randomized trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability
Palermo, TA
Valenzuela, D
Stork, PP
[J]. PAIN, 2004, 107 (03) : 213 - 219
[24] The effects of cognitive-behavioral therapy for youth anxiety on sleep problems
Peterman, Jeremy S.
Carper, Matthew M.
Elkins, R. Meredith
Comer, Jonathan S.
Pincus, Donna B.
Kendall, Philip C.
[J]. JOURNAL OF ANXIETY DISORDERS, 2016, 37 : 78 - 88
[25] Measuring Sleep Efficiency: What Should the Denominator Be?
Reed, David L.
Sacco, William P.
[J]. JOURNAL OF CLINICAL SLEEP MEDICINE, 2016, 12 (02): : 263 - 266
[26] Using daily diaries to study family settings, emotions, and health in everyday life
Robles, Theodore F.
Reynolds, Bridget M.
Repetti, Rena L.
Chung, Paul J.
[J]. JOURNAL OF SOCIAL AND PERSONAL RELATIONSHIPS, 2013, 30 (02) : 179 - 188
[27] Estimating adolescent sleep patterns: parent reports versus adolescent self-report surveys, sleep diaries, and actigraphy
Short, Michelle A.
Gradisar, Michael
Lack, Leon C.
Wright, Helen R.
Chatburn, Alex
[J]. NATURE AND SCIENCE OF SLEEP, 2013, 5 : 23 - 26
[28] OPTIMAL 2-STAGE DESIGNS FOR PHASE-II CLINICAL-TRIALS
SIMON, R
[J]. CONTROLLED CLINICAL TRIALS, 1989, 10 (01): : 1 - 10
[29] Socioeconomic status and sleep disturbances among pediatric population: a continental systematic review of empirical research
Sosso, F. A. Etindele
Khoury, Tommy
[J]. SLEEP SCIENCE, 2021, 14 (03) : 245 - 256
[30] Sleep Deprivation in Adolescents and Adults: Changes in Affect
Talbot, Lisa S.
McGlinchey, Eleanor L.
Kaplan, Katherine A.
Dahl, Ronald E.
Harvey, Allison G.
[J]. EMOTION, 2010, 10 (06) : 831 - 841

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