The feasibility and acceptability of mobile ecological momentary assessment to evaluate sleep, family functioning, and affect in patients with pediatric craniopharyngioma
被引:1
作者:
Al Ghriwati, Nour
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机构:
Frederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
NCI, Pediat Oncol Branch, NIH, Rockville, MD 20850 USAFrederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
Al Ghriwati, Nour
[1
,5
]
Winter, Marcia
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机构:
Virginia Commonwealth Univ, Dept Psychol, Richmond, VA USAFrederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
Winter, Marcia
[2
]
Semko, Joshua
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机构:
Univ Mississippi, Dept Psychol, University, MS USAFrederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
Semko, Joshua
[3
]
Merchant, Thomas E.
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机构:
St Jude Childrens Res Hosp, Memphis, TN USAFrederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
Merchant, Thomas E.
[4
]
Crabtree, Valerie McLaughlin
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机构:
St Jude Childrens Res Hosp, Memphis, TN USAFrederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
Crabtree, Valerie McLaughlin
[4
]
机构:
[1] Frederick Natl Lab Canc Res, Clin Res Directorate, Frederick, MD USA
[2] Virginia Commonwealth Univ, Dept Psychol, Richmond, VA USA
[3] Univ Mississippi, Dept Psychol, University, MS USA
[4] St Jude Childrens Res Hosp, Memphis, TN USA
[5] NCI, Pediat Oncol Branch, NIH, Rockville, MD 20850 USA
Purpose/ObjectivesWe aimed to assess the feasibility and acceptability of mobile ecological momentary assessment (mEMA) for youth with craniopharyngioma and evaluate daily associations among family functioning, affect, and sleep difficulties.Design/Research ApproachYouth completed two mEMA diaries per day for one week.Sample/ParticipantsThirty-nine youth who underwent surgery and proton radiotherapy (when indicated) for craniopharyngioma.Methods/Methodological ApproachDescriptive statistics and multi-level modeling were used to examine feasibility and acceptability of mEMA and daily associations among family functioning, affect, and sleep.FindingsYouth reported satisfaction and minimal burden from completing daily mEMA diaries. Poorer family functioning was not related to lower sleep efficiency.Conclusions/InterpretationmEMA is an acceptable and feasible method for evaluating sleep and related variables in children and adolescents with craniopharyngioma.Implications for Psychosocial Providers or PolicyResults highlight the utility of gathering mEMA data in youth at elevated risk for sleep difficulties as a function of their illness/treatment.
机构:
Boston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Borus, Joshua S.
Blood, Emily
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机构:
Boston Childrens Hosp, Clin Res Ctr, Boston, MA 02115 USA
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Blood, Emily
Volkening, Lisa K.
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机构:
Joslin Diabet Ctr, Genet & Epidemiol Sect, Boston, MA 02215 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Volkening, Lisa K.
Laffel, Lori
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机构:
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USA
Joslin Diabet Ctr, Genet & Epidemiol Sect, Boston, MA 02215 USA
Joslin Diabet Ctr, Pediat Adolescent & Young Adult Sect, Boston, MA 02215 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Laffel, Lori
Shrier, Lydia A.
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机构:
Boston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
机构:
Univ Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USAUniv Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USA
Fuligni, Andrew J.
Hardway, Christina
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Univ Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USAUniv Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USA
机构:
Boston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Borus, Joshua S.
Blood, Emily
论文数: 0引用数: 0
h-index: 0
机构:
Boston Childrens Hosp, Clin Res Ctr, Boston, MA 02115 USA
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Blood, Emily
Volkening, Lisa K.
论文数: 0引用数: 0
h-index: 0
机构:
Joslin Diabet Ctr, Genet & Epidemiol Sect, Boston, MA 02215 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Volkening, Lisa K.
Laffel, Lori
论文数: 0引用数: 0
h-index: 0
机构:
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USA
Joslin Diabet Ctr, Genet & Epidemiol Sect, Boston, MA 02215 USA
Joslin Diabet Ctr, Pediat Adolescent & Young Adult Sect, Boston, MA 02215 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Laffel, Lori
Shrier, Lydia A.
论文数: 0引用数: 0
h-index: 0
机构:
Boston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USABoston Childrens Hosp, Div Adolescent Young Adult Med, Boston, MA 02115 USA
机构:
Univ Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USAUniv Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USA
Fuligni, Andrew J.
Hardway, Christina
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USAUniv Calif Los Angeles, Ctr Culture & Hlth, Semel Inst Neurosci & Human Behav, Los Angeles, CA 90024 USA