Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs

被引：2
作者：
Morgan, Paul L. [1 ,2 ,4 ]
Hu, Eric Hengyu [1 ]
Woods, Adrienne D. [3 ]
Gloski, Cecelia A. [1 ]
Wang, Yangyang [1 ]
机构：
[1] Penn State Univ, Dept Educ Policy Studies, University Pk, PA USA
[2] Penn State Univ, Populat Res Inst, University Pk, PA USA
[3] SRI Int, Ctr Learning & Dev, Menlo Pk, CA USA
[4] Dept Educ Policy Studies, 310E Rackley Bldg, University Pk, PA 16802 USA
来源：
JOURNAL OF PEDIATRICS | 2023年 / 253卷
关键词：
ETHNIC DISPARITIES; NATIONAL-SURVEY; DEVELOPMENTAL-DISABILITIES; UNMET NEED; QUALITY; AUTISM; SERVICES; THERAPY; ACCESS;
D O I：
10.1016/j.jpeds.2022.09.024
中图分类号：
R72 [儿科学];
学科分类号：
100202 ;
摘要：
Cross-sectional analyses of 4 nationally representative samples indicate disparities in family-centered care occur among US children and youth with special healthcare needs by race and ethnicity, family income and composition, insurance coverage, and healthcare setting. Measured confounds including children's health and impairment severity do not explain the disparities.
引用
收藏
页码：297 / +
页数：13
相关论文
共 50 条
  • [1] Family-Centered Care for US Children With Special Health Care Needs: Who Gets It and Why?
    Coker, Tumaini R.
    Rodriguez, Michael A.
    Flores, Glenn
    PEDIATRICS, 2010, 125 (06) : 1159 - 1167
  • [2] Children and Youth with Special Health Care Needs: Progress Towards More Family-Centered Systems of Care
    Walker, Deborah Klein
    Perrin, James M.
    Wells, Nora
    Vessey, Judith A.
    Difazio, Rachel L.
    MATERNAL AND CHILD HEALTH JOURNAL, 2024,
  • [3] Associations of Family-Centered Care with Health Care Outcomes for Children with Special Health Care Needs
    Kuo, Dennis Z.
    Mac Bird, T.
    Tilford, J. Mick
    MATERNAL AND CHILD HEALTH JOURNAL, 2011, 15 (06) : 794 - 805
  • [4] Evidence for Family-Centered Care for Children With Special Health Care Needs: A Systematic Review
    Kuhlthau, Karen A.
    Bloom, Sheila
    Van Cleave, Jeanne
    Knapp, Alixandra A.
    Romm, Diane
    Klatka, Kirsten
    Homer, Charles J.
    Newacheck, Paul W.
    Perrin, James M.
    ACADEMIC PEDIATRICS, 2011, 11 (02) : 136 - 143
  • [5] Do health literacy disparities explain racial disparities in family-centered care for youths with special health care needs?
    Chisolm, Deena J.
    Keedy, Hannah E.
    Dolce, Millie
    Chavez, Laura
    Abrams, Mary Ann
    Sanders, Lee
    PATIENT EDUCATION AND COUNSELING, 2021, 104 (04) : 887 - 895
  • [6] Exploring national trends of patient- and family-centered care among US children
    Anderson, Andrew C.
    Akre, Ellesse
    Chen, Jie
    JOURNAL OF CHILD HEALTH CARE, 2019, 23 (02) : 200 - 212
  • [7] Disparities in Health Care Quality among Asian Children with Special Health Care Needs
    Son, Esther
    Parish, Susan L.
    Igdalsky, Leah
    HEALTH & SOCIAL WORK, 2017, 42 (02) : 95 - 102
  • [8] Care Coordination, the Family-Centered Medical Home, and Functional Disability Among Children With Special Health Care Needs
    Litt, Jonathan S.
    McCormick, Marie C.
    ACADEMIC PEDIATRICS, 2015, 15 (02) : 185 - 190
  • [9] Family-Centered Care Measurement and Associations With Unmet Health Care Need Among US Children
    Lindly, Olivia J.
    Geldhof, G. John
    Acock, Alan C.
    Sakuma, Kari-Lyn K.
    Zuckerman, Katharine E.
    Thorburn, Sheryl
    ACADEMIC PEDIATRICS, 2017, 17 (06) : 656 - 664
  • [10] Care Coordination with Schools: The Role of Family-Centered Care for Children with Special Health Care Needs
    Barnard-Brak, Lucy
    Stevens, Tara
    Carpenter, Julianna
    MATERNAL AND CHILD HEALTH JOURNAL, 2017, 21 (05) : 1073 - 1078
12345