Gaps in the System: Supporting People Living with Dementia

被引：5

作者：

King, Madeline ^{[1
]}

Peckham, Allie ^{[1
,2
,3
]}

Marani, Husayn ^{[1
,4
]}

Roerig, Monika ^{[1
,4
]}

Yung, Seles ^{[5
]}

McGrail, Kimberlyn ^{[5
]}

Young, Yuchi ^{[6
]}

Shaw, James ^{[4
,7
]}

Marchildon, Greg ^{[1
,4
]}

机构：

[1] North Amer Observ Hlth Syst & Pol, Toronto, ON, Canada

[2] Arizona State Univ, Edson Coll Nursing & Hlth Innovat, 550 N 3rd St, Phoenix, AZ 85004 USA

[3] Arizona State Univ, Ctr Innovat Hlth & Resilient Aging, Phoenix, AZ 85004 USA

[4] Univ Toronto, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada

[5] Univ British Columbia, Ctr Hlth Serv & Policy Res, Vancouver, BC, Canada

[6] SUNY Albany, Sch Publ Hlth, Albany, NY USA

[7] Univ Toronto, Dept Phys Therapy, Toronto, ON, Canada

来源：

JOURNAL OF AGING & SOCIAL POLICY | 2024年 / 36卷 / 05期

基金：

加拿大健康研究院;

关键词：

Alzheimer's disease; dementia; health systems; integrated care; care coordination; person-centered approach; care; INFORMAL CAREGIVERS; CARE; HEALTH;

D O I：

10.1080/08959420.2023.2226341

中图分类号：

R4 [临床医学]; R592 [老年病学];

学科分类号：

1002 ; 100203 ; 100602 ;

摘要：

Persons living with dementia and their caregivers often face challenges in accessing support for their complex needs. This study aims to understand how program administrators, people living with dementia, unpaid caregivers, and decision-makers perceive specific dementia care programs and whether they are adequately meeting the needs of individuals living with dementia. Forty semi-structured interviews were conducted between 2018 and 2020 in five North American jurisdictions. Three main gaps were identified (1) disconnected system infrastructure, (2) lack of comprehensive services to meet diverse needs, and (3) inconsistent understandings of dementia. Despite having programs in place, there remain significant limitations in systems that could be addressed to adequately meet the needs of individuals living with dementia and their caregivers.

引用

页码：963 / 983

页数：21

共 41 条

[1]

Alzheimer's Association, 2020, ALZH DIS FACTS FIG S

[2]

Alzheimer's Association and Centers for Disease Control and Prevention, 2018, HLTH BRAIN IN STAT L

[3]

[Anonymous], 2015, 1 WHO MIN C GLOB ACT

[4]

[Anonymous], G8 DEM SUMM GLOB ACT

[5] Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australia [J].

Bauer, Michael ;

Fetherstonhaugh, Deirdre ;

Blackberry, Irene ;

Farmer, Jane ;

Wilding, Clare .

AUSTRALIAN JOURNAL OF RURAL HEALTH, 2019, 27 (01) :22-27

[6] Unmet Needs of Community-Residing Persons with Dementia and Their Informal Caregivers: Findings from the Maximizing Independence at Home Study [J].

Black, Betty S. ;

Johnston, Deirdre ;

Rabins, Peter V. ;

Morrison, Ann ;

Lyketsos, Constantine ;

Samus, Quincy M. .

JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2013, 61 (12) :2087-2095

[7]

Braun V., 2022, Thematic analysis: A practical guide

[8]

Brodaty Henry, 2009, Dialogues Clin Neurosci, V11, P217

[9]

Canadian Institute of Health Information, 2020, DEM CAN SUMM

[10]

Canadian Institutes of Health Research, 2019, LIV BETT

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