Patient Responses to the Term Pain Catastrophizing: Thematic Analysis of Cross-sectional International Data

被引：21

作者：

Webster, Fiona ^{[1
]}

Connoy, Laura ^{[1
]}

Longo, Riana ^{[1
]}

Ahuja, Devdeep ^{[2
]}

Amtmann, Dagmar ^{[3
]}

Anderson, Andrea

Ashton-James, Claire E. ^{[4
]}

Boyd, Hannah ^{[5
]}

Chambers, Christine T. ^{[6
,7
,8
]}

Cook, Karon F.

Cowan, Penney ^{[9
]}

Crombez, Geert ^{[10
]}

Feinstein, Amanda B. ^{[11
]}

Fuqua, Anne ^{[12
]}

Gilam, Gadi ^{[13
]}

Jordan, Isabel

Mackey, Sean C. ^{[14
]}

Martins, Eduarda ^{[15
]}

Martire, Lynn M. ^{[16
]}

O'Sullivan, Peter ^{[17
]}

Richards, Dawn P. ^{[18
,19
]}

Turner, Judith A. ^{[20
]}

Veasley, Christin ^{[21
]}

Wurtzen, Hanne ^{[22
]}

Yang, Su-Yin ^{[23
]}

You, Dokyoung S. ^{[14
]}

Ziadni, Maisa ^{[14
]}

Darnall, Beth ^{[14
]}

机构：

[1] Western Univ, Arthur Labatt Family Sch Nursing, London, ON, Canada

[2] RTW Plus, London, England

[3] Univ Washington, UW Ctr Outcomes Res Rehabil UWCORR, Dept Rehabil Med, Seattle, WA USA

[4] Univ Sydney, Kolling Inst, Sydney Med Sch, St Leonards, NSW, Australia

[5] Stanford Univ, Palo Alto, CA USA

[6] Dalhousie Univ, Dept Psychol & Neurosci, Halifax, NS, Canada

[7] Dalhousie Univ, Dept Pediat, Halifax, NS, Canada

[8] IWK Hlth, Ctr Pediat Pain Res, Halifax, NS, Canada

[9] World Patients Alliance, Amer Chron Pain Assoc, Washington, DC USA

[10] Univ Ghent, Dept Expt Clin & Hlth Psychol, Psychol & Educ Sci, Ghent, Belgium

[11] Stanford Univ, Sch Med, Stanford Childrens Hlth, Menlo Pk, CA USA

[12] Univ Alabama Birmingham, Birmingham, AL USA

[13] Hebrew Univ Jerusalem, Inst Biomed & Oral Res, Jerusalem, Israel

[14] Stanford Univ, Dept Anesthesiol Perioperat & Pain Med, Div Pain Med, Palo Alto, CA 94305 USA

[15] Ctr Hosp Povoa De Varzim Vila Do Conde EPE, Vila Do Conde, Portugal

[16] Penn State Univ, University Pk, PA USA

[17] Curtin Univ, Curtin Sch Allied Hlth, Perth, WA, Australia

[18] Five02 Labs Inc, Toronto, ON, Canada

[19] Canadian Arthrit Patient Alliance, Toronto, ON, Canada

[20] Univ Washington, Sch Med, Seattle, WA USA

[21] Chron Pain Res Alliance, Milwaukee, WI USA

[22] Univ Ghent, Ghent, Belgium

[23] Tan Tock Seng Hosp, Dept Psychol, Singapore, Singapore

来源：

JOURNAL OF PAIN | 2023年 / 24卷 / 02期

基金：

美国国家卫生研究院; 加拿大健康研究院;

关键词：

Chronic pain; patient perspective; pain catastrophizing; stigma; patient-centered; qualitative; COGNITIVE-BEHAVIORAL THERAPY; SELF-EFFICACY; PERSPECTIVES; INDIVIDUALS; SCALE;

D O I：

10.1016/j.jpain.2022.10.001

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Pain catastrophizing is understood as a negative cognitive and emotional response to pain. Researchers, advocates and patients have reported stigmatizing effects of the term in clinical settings and the media. We conducted an international study to investigate patient perspectives on the term pain catastrophizing. Open-ended electronic patient and caregiver proxy surveys were promoted internationally by collaborator stakeholders and through social media. 3,521 surveys were received from 47 countries (77.3% from the U.S.). The sample was mainly female (82.1%), with a mean age of 41.62 (SD 12.03) years; 95% reported ongoing pain and pain duration > 10 years (68.4%). Forty-five percent (n = 1,295) had heard of the term pain catastrophizing; 12% (n = 349) reported being described as a 'pain catastrophizer' by a clinician with associated high levels of feeling blamed, judged, and dismissed. We present qualitative thematic data analytics for responses to open-ended questions, with 32% of responses highlighting the problematic nature of the term. We present the patients' perspective on the term pain catastrophizing, its material effect on clinical experiences, and associations with negative gender stereotypes. Use of patient-centered terminology may be important for favorably shaping the social context of patients' experience of pain and pain care. Perspective: Our international patient survey found that 45% had heard of the term pain catastrophizing, about one-third spontaneously rated the term as problematic, and 12% reported the term was applied to them with most stating this was a negative experience. Clinician education on patient-centered terminology may improve care and reduce stigma. (c) 2022 The Author(s). Published by Elsevier Inc. on behalf of United States Association for the Study of Pain, Inc. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/)

引用

页码：356 / 367

页数：12

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