Feasibility and Acceptability: Narrative Writing with Caregivers in Pediatric Critical Care

被引:2
作者
Grossoehme, Daniel H. [1 ,6 ]
Robinson, Nicole [2 ]
Aultman, Julie M. [3 ]
Forbes, Michael L. [4 ]
Gerak, Laura [5 ]
Friebert, Sarah [1 ]
机构
[1] Rebecca D Considine Res Inst, Haslinger Family Pediat Palliat Care Ctr, Akron, OH USA
[2] Akron Childrens Hosp, Emily Cooper Welty Express Therapy Ctr, Haslinger Family Pediat Palliat Care Ctr, Akron, OH USA
[3] Akron Childrens Hosp, Ethics Comm, Dept Family & Community Med, NEOMED, Akron, OH USA
[4] Akron Childrens Hosp, Dept Pediat, Div Crit Care Med, Akron, OH USA
[5] Akron Childrens Hosp, Psychol Serv, Akron, OH USA
[6] Rebecca D Considine Res Inst, Haslinger Family Pediat Palliat Care Ctr, 215 West Bowery St, Akron, OH 44038 USA
关键词
critical care; narrative medicine; palliative care; pediatric; POSTTRAUMATIC-STRESS; DIARIES; PILOT; UNIT; ICU;
D O I
10.1089/jpm.2022.0207
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Pediatric intensive care unit (PICU) admissions are caregiver stressors with potential long-term impact. Writing interventions have shown health benefits, although not yet with parents writing during their child's PICU admission.Objective: The study objective was to quantify intervention acceptability and feasibility and to qualitatively examine written texts.Design: This is a proof-of-concept three-arm randomized trial.Setting and Subjects: Subjects were legal caregivers >= 18 years, able to read and write English, and of children <= 18 years in a U.S. PICU for >= 1 day.Measurements: Treatment Acceptability Questionnaire, enrollment rates, completed encounters, and qualitative thematic analysis.Results: Acceptability was high (49% enrollment; mean [standard deviation] Treatment Acceptability Questionnaire scores: M = 24.8 [2.4]). Feasibility was 100% scheduled-to-completed sessions. Thematic analysis revealed two themes (people and relationships); texts were more cognitive than emotional.Conclusions: Caregivers, provided resources and supported by a narrative medicine facilitator, are likely to engage in expressive writing. The intervention warrants subsequent development.
引用
收藏
页码:114 / 119
页数:6
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