Feasibility and Acceptability: Narrative Writing with Caregivers in Pediatric Critical Care

被引:2
作者
Grossoehme, Daniel H. [1 ,6 ]
Robinson, Nicole [2 ]
Aultman, Julie M. [3 ]
Forbes, Michael L. [4 ]
Gerak, Laura [5 ]
Friebert, Sarah [1 ]
机构
[1] Rebecca D Considine Res Inst, Haslinger Family Pediat Palliat Care Ctr, Akron, OH USA
[2] Akron Childrens Hosp, Emily Cooper Welty Express Therapy Ctr, Haslinger Family Pediat Palliat Care Ctr, Akron, OH USA
[3] Akron Childrens Hosp, Ethics Comm, Dept Family & Community Med, NEOMED, Akron, OH USA
[4] Akron Childrens Hosp, Dept Pediat, Div Crit Care Med, Akron, OH USA
[5] Akron Childrens Hosp, Psychol Serv, Akron, OH USA
[6] Rebecca D Considine Res Inst, Haslinger Family Pediat Palliat Care Ctr, 215 West Bowery St, Akron, OH 44038 USA
关键词
critical care; narrative medicine; palliative care; pediatric; POSTTRAUMATIC-STRESS; DIARIES; PILOT; UNIT; ICU;
D O I
10.1089/jpm.2022.0207
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Pediatric intensive care unit (PICU) admissions are caregiver stressors with potential long-term impact. Writing interventions have shown health benefits, although not yet with parents writing during their child's PICU admission.Objective: The study objective was to quantify intervention acceptability and feasibility and to qualitatively examine written texts.Design: This is a proof-of-concept three-arm randomized trial.Setting and Subjects: Subjects were legal caregivers >= 18 years, able to read and write English, and of children <= 18 years in a U.S. PICU for >= 1 day.Measurements: Treatment Acceptability Questionnaire, enrollment rates, completed encounters, and qualitative thematic analysis.Results: Acceptability was high (49% enrollment; mean [standard deviation] Treatment Acceptability Questionnaire scores: M = 24.8 [2.4]). Feasibility was 100% scheduled-to-completed sessions. Thematic analysis revealed two themes (people and relationships); texts were more cognitive than emotional.Conclusions: Caregivers, provided resources and supported by a narrative medicine facilitator, are likely to engage in expressive writing. The intervention warrants subsequent development.
引用
收藏
页码:114 / 119
页数:6
相关论文
共 50 条
  • [1] Narrative review of pediatric critical care humanization: Where we are?
    Garcia-Salido, A.
    Heras la Calle, G.
    Serrano Gonzalez, A.
    MEDICINA INTENSIVA, 2019, 43 (05) : 290 - 298
  • [2] Biography Writing in the Pediatric Palliative Care Context: Review and Feasibility Data
    Potter, Sarah
    Coombs, Sandra
    Jaaniste, Tiina
    CHILDREN-BASEL, 2025, 12 (01):
  • [3] Proof of concept, feasibility, and acceptability of spiritual care assessment and intervention-pediatric with caregivers of children receiving home mechanical ventilation
    Grossoehme, Daniel H.
    Varner-Perez, Shelley E.
    Baxter-Andrews, Patrick
    Brown, Miraides
    Drummond, Sean
    Jenkins, Rachel
    Friebert, Sarah
    Torke, Alexia M.
    JOURNAL OF HEALTH CARE CHAPLAINCY, 2024,
  • [4] Feasibility and Acceptability of a Palliative Care Intervention among Older Adults with Advanced CKD and Their Caregivers
    Saeed, Fahad
    Horowitz, Robert K.
    Allen, Rebecca J.
    Auinger, Peggy
    Epstein, Ronald M.
    Fiscella, Kevin A.
    Veazie, Peter J.
    Duberstein, Paul R.
    KIDNEY360, 2025, 6 (02): : 236 - 246
  • [5] Pediatric Critical Care Outcomes: State of the Science
    Perry-Eaddy, Mallory A.
    Dervan, Leslie A.
    Manning, Joseph C.
    Watson, R. Scott
    Curley, Martha A. Q.
    CRITICAL CARE CLINICS, 2023, 39 (02) : 309 - 326
  • [6] Palliative and Critical Care: Their Convergence in the Pediatric Intensive Care Unit
    Buang, Siti Nur Hanim
    Loh, Sin Wee
    Mok, Yee Hui
    Lee, Jan Hau
    Chan, Yoke Hwee
    FRONTIERS IN PEDIATRICS, 2022, 10
  • [7] Adult Critical Care Electroencephalography Monitoring for Seizures: A Narrative Review
    Sharma, Sonali
    Nunes, Michelle
    Alkhachroum, Ayham
    FRONTIERS IN NEUROLOGY, 2022, 13
  • [8] Feasibility of bispectral index monitoring during pediatric critical care transport
    Watson, Adam
    Zanetti, Francesca
    Ross, Oliver
    Pappachan, John
    Griksaitis, Michael J.
    PEDIATRIC ANESTHESIA, 2025, 35 (01) : 77 - 78
  • [9] Immunoparalysis in Pediatric Critical Care
    Hall, Mark W.
    Greathouse, Kristin C.
    Thakkar, Rajan K.
    Sribnick, Eric A.
    Muszynski, Jennifer A.
    PEDIATRIC CLINICS OF NORTH AMERICA, 2017, 64 (05) : 1089 - +
  • [10] Trauma-Responsive Care in a Pediatric Setting: Feasibility and Acceptability of Screening for Adverse Childhood Experiences
    Kia-Keating, Maryam
    Barnett, Miya L.
    Liu, Sabrina R.
    Sims, Ginette M.
    Ruth, Andria B.
    AMERICAN JOURNAL OF COMMUNITY PSYCHOLOGY, 2019, : 286 - 297