Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia

被引:2
|
作者
Alegre-Agis, Elisa [1 ]
Garcia-Santesmases, Andrea [2 ]
Pie-Balaguer, Asun [3 ]
Martinez-Hernaez, Angel [1 ]
Bekele, Deborah [1 ]
Morales-Saez, Nicolas [1 ]
Serrano-Miguel, Mercedes [1 ,4 ]
机构
[1] Rovira & Virgili Univ, Med Anthropol Res Ctr, Campus Catalunya Avinguda Catalunya 35, Tarragona 43002, Catalonia, Spain
[2] Natl Distance Educ Univ, Dept Social Work, C Calle Obispo Trejo 2, Madrid 28040, Spain
[3] Open Univ Catalonia, Dept Psychol & Educ, Rambla Poblenou 156, Barcelona 08018, Spain
[4] Univ Barcelona, Dept Social Work, Campus Mundet,Passeig Vall DHebron 171, Barcelona 08035, Spain
关键词
Severe mental disorders; Institutional violence; Gender-based violence; Caregivers; Medical Anthropology; AUTONOMOUS MEDICATION; BURDEN; SCHIZOPHRENIA; ILLNESS; MANAGEMENT; FAMILIES; CHILDREN; STIGMA; COST;
D O I
10.1007/s11013-022-09788-z
中图分类号
Q98 [人类学];
学科分类号
030303 ;
摘要
In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of "nested dependencies", which create social isolation. This produces the conditions of "reactionary care", practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.
引用
收藏
页码:790 / 813
页数:24
相关论文
共 50 条
  • [1] Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
    Elisa Alegre-Agís
    Andrea García-Santesmases
    Asun Pié-Balaguer
    Àngel Martínez-Hernáez
    Deborah Bekele
    Nicolás Morales-Sáez
    Mercedes Serrano-Miguel
    Culture, Medicine, and Psychiatry, 2023, 47 : 790 - 813
  • [2] Health effects of caregiving and coping with severe mental disorders: A caregivers' experience
    Silaule, Olindah
    Adams, Fasloen
    Nkosi, Nokuthula G.
    SOUTH AFRICAN JOURNAL OF PSYCHIATRY, 2024, 30
  • [3] Stigma experienced by caregivers of patients with severe mental disorders: A nationwide multicentric study
    Grover, Sandeep
    Avasthi, Ajit
    Singh, Aakanksha
    Dan, Amitava
    Neogi, Rajarishi
    Kaur, Darpan
    Lakdawala, Bhavesh
    Rozatkar, Abhijit R.
    Nebhinani, Naresh
    Patra, Suravi
    Sivashankar, Priya
    Subramanyam, Alka A.
    Tripathi, Adarsh
    Gania, Ab Majid
    Singh, Gurvinder Pal
    Behere, Prakash
    INTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY, 2017, 63 (05) : 407 - 417
  • [4] The experience of caregivers of people living with serious mental disorders: a study from rural Ghana
    Ae-Ngibise, Kenneth Ayuurebobi
    Doku, Victor Christian Korley
    Asante, Kwaku Poku
    Owusu-Agyei, Seth
    GLOBAL HEALTH ACTION, 2015, 8
  • [5] Experience of Burden of Care and Support Needs of Informal Caregivers of Persons With Severe Mental Disorders in Rural South Africa: A Qualitative Study
    Silaule, Olindah
    Nkosi, Nokuthula G.
    Adams, Fasloen
    MENTAL ILLNESS, 2024, 2024 (01)
  • [6] Adherence to Dietary Recommendations in Organized Living Beneficiaries with Severe Mental Disorders and Their Caregivers
    Soher, Lidija
    Stokanovic, Milica Cvijetic
    Prsa, Sara
    Miskulin, Maja
    Kenjeric, Daniela
    NUTRIENTS, 2024, 16 (01)
  • [7] Educational Nutrition Workshops: Impact on Nutritional Status in Organized Living Beneficiaries with Severe Mental Disorders and Their Caregivers
    Soher, Lidija
    Stokanovic, Milica Cvijetic
    Prsa, Sara
    Kenjeric, Daniela Cacic
    NUTRIENTS, 2024, 16 (22)
  • [8] Loneliness in the presence of others: A mixed-method study of social networks of caregivers of patients with severe mental disorders
    Tabatabaee, Maryam
    Yousefi Nooraie, Reza
    Mohammad Aghaei, Ardavan
    Rostam-Abadi, Yasna
    Ansari, Mina
    Sharifi, Shamim
    Sharifi, Vandad
    INTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY, 2023, 69 (01) : 190 - 199
  • [9] The Impact of National Health Care Reform on Adults With Severe Mental Disorders
    Garfield, Rachel L.
    Zuvekas, Samuel H.
    Lave, Judith R.
    Donohue, Julie M.
    AMERICAN JOURNAL OF PSYCHIATRY, 2011, 168 (05) : 486 - 494
  • [10] Situational analysis to inform development of primary care and community-based mental health services for severe mental disorders in Nepal
    Angdembe, Mangesh
    Kohrt, Brandon A.
    Jordans, Mark
    Rimal, Damodar
    Luitel, Nagendra P.
    INTERNATIONAL JOURNAL OF MENTAL HEALTH SYSTEMS, 2017, 11