Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience

被引:7
作者
Pillai, Pooja [1 ]
Rawat, Meenal [1 ,2 ]
Jain, Sumeet [2 ]
Martin, Rachelle Anne [3 ]
Shelly, Kakul [1 ]
Mathias, Kaaren [1 ,4 ]
机构
[1] Herbertpur Christian Hosp, Community Hlth & Dev Program, Herbertpur, India
[2] Univ Edinburgh, Sch Social & Polit Sci, Edinburgh, Scotland
[3] Univ Otago, Dept Med, Wellington, New Zealand
[4] Univ Canterbury, Fac Hlth, Christchurch, New Zealand
关键词
mental health & psychiatry; other study design; COPRODUCTION; POWER;
D O I
10.1136/bmjgh-2022-011671
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged?
引用
收藏
页数:7
相关论文
共 34 条
[1]  
Burgess R., 2016, The Palgrave Handbook of Sociocultural Perspectives on Global Mental Health, DOI [10.1057/978-1-137-39510-8, DOI 10.1057/978-1-137-39510-8]
[2]   Working in the wake: transformative global health in an imperfect world [J].
Burgess, Rochelle A. .
BMJ GLOBAL HEALTH, 2022, 7 (09)
[3]   Time is on our side: operationalising 'phase zero' in coproduction of mental health services for marginalised and underserved populations in London [J].
Burgess, Rochelle A. ;
Choudary, Natasha .
INTERNATIONAL JOURNAL OF PUBLIC ADMINISTRATION, 2021, 44 (09) :753-766
[4]   Deconstructing the co-production ideal: Dilemmas of knowledge and representation in a co-design project with people with intellectual disabilities [J].
Chinn, Deborah ;
Pelletier, Caroline .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2020, 45 (04) :326-336
[5]   The role of power, process, and relationships in participatory research for statewide HIV/AIDS programming [J].
Chung, Kimberly ;
Lounsbury, David W. .
SOCIAL SCIENCE & MEDICINE, 2006, 63 (08) :2129-2140
[7]   Patient and Public Involvement in the Coproduction of Knowledge: Reflection on the Analysis of Qualitative Data in a Mental Health Study [J].
Gillard, Steve ;
Simons, Lucy ;
Turner, Kati ;
Lucock, Mike ;
Edwards, Christine .
QUALITATIVE HEALTH RESEARCH, 2012, 22 (08) :1126-1137
[8]   Improving knowledge mobilisation in healthcare: a qualitative exploration of creative co-design methods [J].
Grindell, Cheryl ;
Sanders, Tom ;
Bec, Remi ;
Tod, Angela Mary ;
Wolstenholme, Daniel .
EVIDENCE & POLICY, 2022, 18 (02) :265-290
[9]   A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature [J].
Hoekstra, F. ;
Mrklas, K. J. ;
Khan, M. ;
McKay, R. C. ;
Vis-Dunbar, M. ;
Sibley, K. M. ;
Nguyen, T. ;
Graham, I. D. ;
Gainforth, H. L. .
HEALTH RESEARCH POLICY AND SYSTEMS, 2020, 18 (01)
[10]   Consolidated criteria for strengthening reporting of health research involving indigenous peoples: the CONSIDER statement [J].
Huria, Tania ;
Palmer, Suetonia C. ;
Pitama, Suzanne ;
Beckert, Lutz ;
Lacey, Cameron ;
Ewen, Shaun ;
Smith, Linda Tuhiwai .
BMC MEDICAL RESEARCH METHODOLOGY, 2019, 19 (01)