Perceived negative impact of caregiving demands in parents of individuals with autism spectrum disorders from 9 to 25 years of age

被引：7

作者：

Christopher, Kourtney ^{[1
,3
]}

Tafolla, Maira ^{[1
,2
]}

Sterrett, Kyle ^{[1
]}

Elias, Rebecca ^{[1
,4
,5
]}

Lord, Catherine ^{[1
]}

机构：

[1] Univ Calif Los Angeles, Semel Inst Neurosci & Human Behav, 760 Westwood Pl, Los Angeles, CA 90024 USA

[2] 68 217 Semel Inst Neurosci & Human Behav, 760 Westwood Pl, Los Angeles, CA 90024 USA

[3] Univ Kansas, Med Ctr, 2060 39th Ave, Kansas City, KS 66103 USA

[4] Childrens Hosp Los Angeles, 4650 Sunset Blvd, Los Angeles, CA 90027 USA

[5] Univ Southern Calif, Keck Sch Med, 4650 Sunset Blvd, Los Angeles, CA 90027 USA

来源：

RESEARCH IN AUTISM SPECTRUM DISORDERS | 2023年 / 106卷

基金：

美国国家卫生研究院;

关键词：

Perceived negative impact of caregiving; Caregivers; ASD; Adolescence; Adulthood; Longitudinal; AFRICAN-AMERICAN; INTELLECTUAL DISABILITY; CULTURAL-DIFFERENCES; FAMILY IMPACT; SAS PROCEDURE; YOUNG-ADULTS; CHILDREN; STRESS; BURDEN; MOTHERS;

D O I：

10.1016/j.rasd.2023.102203

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Background: Caregivers of autistic individuals often report higher levels of perceived negative impact of caregiving. We know very little about the trajectories of caregivers perceived negative impact related to caregiving demands over time in autism.Method: The aim of this study was to identify trajectories of perceived negative impact related to parenting of caregivers of autistic individuals and other developmental delays from childhood through emerging adulthood (n = 209). We also explored the factors that predict trajectories of caregiver perceived negative impact including the characteristics of the autistic individuals at age 9 (i.e., social affect, restricted and repetitive behaviors, irritability, hyperactivity, daily living skills and cognitive ability) and caregivers' race, education, social support, and study site.Results: Latent class growth modelling yielded three negative impact of caregiving classes: (1) a low impact class that decreased over time (n = 68, 32.54 %), (2) a medium impact class that increased in negative impact during adolescence and decreased in emerging adulthood (n = 98, 46.98 %), and (3) a high impact class that decreased over time (n = 43, 20.57 %). Across all classes, reductions in negative impact of caregiving over time were reported in emerging adulthood, but the high and medium impact groups were still elevated in comparison to the low impact class at the last timepoint. Caregivers of children with less irritability and parent-reported restricted and repetitive behaviors were more likely to belong to the low negative impact group. Caregivers who were African American, had lower educational attainment and those with social support were more likely to belong to the low negative impact group. Conclusions: These findings highlight the importance of continued support for caregivers of autistic individuals over time. The influence of race and education on levels of caregiver perceived negative impact of caregiving are discussed further.

引用

页数：12

共 86 条

[1]

AMAN MG, 1985, AM J MENT DEF, V89, P485

[2] Predictors of parenting stress in a diverse sample of parents of early adolescents in high-risk communities [J].