Self-reported needs of caregivers of people with Autism Spectrum Disorder

被引：6
|
作者：
Colombet, Claire [1 ]
Alcaraz, Celine [1 ]
de la Tribonniere, Xavier [2 ,3 ]
Morsa, Maxime [4 ]
Rattaz, Cecile [1 ]
Baghdadli, Amaria [1 ,3 ,5 ]
机构：
[1] CHU Montpellier, Ctr Ressource Autisme Languedoc, Roussillon & Ctr Excellence Autisme & Troubles Ne, Montpellier, France
[2] CHU Montpellier, Unite Transversale Educ Patient UTEP, Montpellier, France
[3] Univ Montpellier, Fac Med, Montpellier, France
[4] Univ Paris Sorbonne Paris Nord, Lab Educ & Prat Sante UR3412, Bobigny, France
[5] Univ Paris Saclay, UVSQ, INSERM, CESP, F-94807 Villejuif, France
来源：
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 07期
关键词：
Autism spectrum disorder; Patient education; Caregivers; Needs; Self-care; Self-management; QUALITY-OF-LIFE; EDUCATION-PROGRAM; PATIENT EDUCATION; CHILDREN; PARENTS; ADOLESCENTS; FAMILIES; SUPPORT; EXPERIENCES; CARE;
D O I：
10.1007/s10803-022-05499-x
中图分类号：
B844 [发展心理学（人类心理学）];
学科分类号：
040202 ;
摘要：
Objectives Autism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs. Methods This was a descriptive cross-sectional study conducted through a declarative and self-administered survey in France. Results 1,013 individuals answered the questionnaire in 2020. If most caregivers felt they had sufficient knowledge about ASD, they still expressed a high level of needs regarding acquiring knowledge, identifying available resources, and finding social/emotional support. Conclusions This study highlights the high level of needs of caregivers and their expectations of improving their knowledge and skills to help the person with ASD.
引用
收藏
页码：2798 / 2805
页数：8
相关论文
共 50 条
  • [1] Self-reported needs of caregivers of people with Autism Spectrum Disorder
    Claire Colombet
    Céline Alcaraz
    Xavier de la Tribonnière
    Maxime Morsa
    Cécile Rattaz
    Amaria Baghdadli
    Journal of Autism and Developmental Disorders, 2023, 53 : 2798 - 2805
  • [2] Emotional intelligence modulates cortisol awakening response and self-reported health in caregivers of people with autism spectrum disorders
    Ruiz-Robledillo, N.
    Moya-Albiol, L.
    RESEARCH IN AUTISM SPECTRUM DISORDERS, 2014, 8 (11) : 1535 - 1543
  • [3] A Systematic Review of Self-Reported Stress Questionnaires in People on the Autism Spectrum
    Thoen, Anoushka
    Steyaert, Jean
    Alaerts, Kaat
    Evers, Kris
    Van Damme, Tine
    REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2021, 10 (2) : 295 - 318
  • [4] A Systematic Review of Self-Reported Stress Questionnaires in People on the Autism Spectrum
    Anoushka Thoen
    Jean Steyaert
    Kaat Alaerts
    Kris Evers
    Tine Van Damme
    Review Journal of Autism and Developmental Disorders, 2023, 10 : 295 - 318
  • [5] Child Temperament and Predictors of Perceived Stress and Self-Reported Needs in Parents of Children with Autism Spectrum Disorder (ASD)
    Feeg, Veronica
    Carpente, John
    Kelliher, Michael
    Bono-Neri, Francine
    Gardner, Marcia
    NURSING RESEARCH, 2020, 69 (03) : E46 - E46
  • [6] Self-reported social impairments predict depressive disorder in adults with autism spectrum disorder
    Day, Talena C.
    McNaughton, Kathryn A.
    Naples, Adam J.
    McPartland, James C.
    AUTISM, 2020, 24 (02) : 297 - 306
  • [7] Sexuality in Adolescent Boys with Autism Spectrum Disorder: Self-reported Behaviours and Attitudes
    Jeroen Dewinter
    Robert Vermeiren
    Ine Vanwesenbeeck
    Jill Lobbestael
    Chijs Van Nieuwenhuizen
    Journal of Autism and Developmental Disorders, 2015, 45 : 731 - 741
  • [8] The New Zealand minds for minds autism spectrum disorder self-reported cohort
    Virues-Ortega, Javier
    Lehnert, Klaus
    Swan, Brendan
    Taylor, Michael W.
    Southee, Adrienne
    Dougan, Dane
    Taylor, Juliet
    Hill, Rosamund
    Snell, Russell G.
    Jacobsen, Jessie C.
    RESEARCH IN AUTISM SPECTRUM DISORDERS, 2017, 36 : 1 - 7
  • [9] Parent- and Self-Reported Social Skills Importance in Autism Spectrum Disorder
    Rankin, James A.
    Weber, Rebecca J.
    Kang, Erin
    Lerner, Matthew D.
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2016, 46 (01) : 273 - 286
  • [10] Sexuality in Adolescent Boys with Autism Spectrum Disorder: Self-reported Behaviours and Attitudes
    Dewinter, Jeroen
    Vermeiren, Robert
    Vanwesenbeeck, Ine
    Lobbestael, Jill
    Van Nieuwenhuizen, Chijs
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2015, 45 (03) : 731 - 741
12345