Exploring the digital support needs of caregivers of people with serious mental illness

被引:3
作者
Siddiqui, Farheen [1 ]
Varghese, Delvin [1 ]
Singh, Pushpendra [2 ]
Bayyavarapu, Sunita Bapuji
Lindsay, Stephen [3 ]
Chandrasekara, Dharshani [1 ]
Kulkarni, Pranav [1 ]
Wu, Ling [1 ]
Alshehri, Taghreed [4 ]
Olivier, Patrick [1 ]
机构
[1] Monash Univ, Act Lab, Melbourne, Australia
[2] IIIT Delhi, Comp Sci & Engn, New Delhi, India
[3] Univ Glasgow, Sch Comp Sci, Glasgow, Scotland
[4] Taif Univ, Taif, Saudi Arabia
来源
PROCEEDINGS OF THE 2023 CHI CONFERENCE ON HUMAN FACTORS IN COMPUTING SYSTEMS, CHI 2023 | 2023年
关键词
caregivers; mental health; empowerment; peer support; online communities; mhealth; HCI4D; India; MULTIPLE-FAMILY GROUPS; PEER SUPPORT; SOUTH-ASIA; HEALTH; SCHIZOPHRENIA; STIGMA; INTERVENTION; INTERNET; IMPACT; TECHNOLOGY;
D O I
10.1145/3544548.3580674
中图分类号
TP [自动化技术、计算机技术];
学科分类号
0812 ;
摘要
In low-and middle-income countries like India, people with severe mental illness (PSMI) rely on their families as a primary source of care, given the lack of support from healthcare systems. The demanding nature of caregiving places significant physical and mental demands on caregivers, who are the primary source of support to PSMI. We explore how caregivers in under-resourced settings can be better supported through everyday digital technologies. We conducted interviews with caregivers (from urban and rural India), as well as workshops with professionals from Indian NGOs that work directly with PSMIs. We found that technology has the potential to (1) provide carer-centred support that empowers carers who experience stigma and issues with existing support networks; (2) provide support for carers to overcome barriers and progress in the recovery of the PSMI. We conclude with design considerations, proposing how an online peer community can leverage carers' expertise to actualise support provision.
引用
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页数:16
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