A full semantic toolbox is essential for autism research and practice to thrive

被引:30
作者
Singer, Alison [1 ]
Lutz, Amy [2 ]
Escher, Jill [3 ]
Halladay, Alycia [1 ,4 ,5 ]
机构
[1] Autism Sci Fdn, New York, NY USA
[2] Univ Penn, Hist & Sociol Sci, Philadelphia, PA USA
[3] Natl Council Severe Autism, San Jose, CA USA
[4] Rutgers State Univ, Dept Pharmacol & Toxicol, Piscataway, NJ USA
[5] Autism Sci Fdn, 106 W 32 St 115, New York, NY 10001 USA
关键词
autism spectrum disorder; bias; language; Vocabulary; LANGUAGE; SPECTRUM;
D O I
10.1002/aur.2876
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism. Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution. Lay Summary center dot Scientists and clinicians must be able to use the vocabulary necessary to describe the wide range of autistic people they study and support without fear of censure or retribution. center dot Lists of acceptable terms, written by subsets of the community, threaten inappropriate censorship and erasure of problems experienced by many with autism. center dot No one should have the power to censor language to exclude the observable realities of autism. Scientists must have access to a full semantic toolbox to describe research findings and clinical realities.
引用
收藏
页码:497 / 501
页数:5
相关论文
共 31 条
[1]   Recommended Terminology for Substance Use Disorders in the Care of Children, Adolescents, Young Adults, and Families [J].
Alinsky, Rachel H. ;
Hadland, Scott E. ;
Quigley, Joanna ;
Patrick, Stephen W. .
PEDIATRICS, 2022, 149 (06)
[2]  
Andrews DS, 2022, BIOL PSYCHIAT, V91, P977, DOI [10.1016/j.biopsych.2021.01.016, 10.1016/j.biopsych.2022.01.016]
[3]  
[Anonymous], 2022, I THOUGHT YOU WERE B
[4]   Analysis of shared heritability in common disorders of the brain [J].
Anttila, Verneri ;
Bulik-Sullivan, Brendan ;
Finucane, Hilary K. ;
Walters, Raymond K. ;
Bras, Jose ;
Duncan, Laramie ;
Escott-Price, Valentina ;
Falcone, Guido J. ;
Gormley, Padhraig ;
Malik, Rainer ;
Patsopoulos, Nikolaos A. ;
Ripke, Stephan ;
Wei, Zhi ;
Yu, Dongmei ;
Lee, Phil H. ;
Turley, Patrick ;
Grenier-Boley, Benjamin ;
Chouraki, Vincent ;
Kamatani, Yoichiro ;
Berr, Claudine ;
Letenneur, Luc ;
Hannequin, Didier ;
Amouyel, Philippe ;
Boland, Anne ;
Deleuze, Jean-Francois ;
Duron, Emmanuelle ;
Vardarajan, Badri N. ;
Reitz, Christiane ;
Goate, Alison M. ;
Huentelman, Matthew J. ;
Kamboh, M. Ilyas ;
Larson, Eric B. ;
Rogaeva, Ekaterina ;
St George-Hyslop, Peter ;
Hakonarson, Hakon ;
Kukull, Walter A. ;
Farrer, Lindsay A. ;
Barnes, Lisa L. ;
Beach, Thomas G. ;
Demirci, F. Yesim ;
Head, Elizabeth ;
Hulette, Christine M. ;
Jicha, Gregory A. ;
Kauwe, John S. K. ;
Kaye, Jeffrey A. ;
Leverenz, James B. ;
Levey, Allan I. ;
Lieberman, Andrew P. ;
Pankratz, Vernon S. ;
Poon, Wayne W. .
SCIENCE, 2018, 360 (6395) :1313-+
[5]  
Blaber R., 2022, CALLING IT AUTISM SP
[6]   Avoiding Ableist Language: Suggestions for Autism Researchers [J].
Bottema-Beutel, Kristen ;
Kapp, Steven K. ;
Lester, Jessica Nina ;
Sasson, Noah J. ;
Hand, Brittany N. .
AUTISM IN ADULTHOOD, 2021, 3 (01) :18-29
[7]   Prevalence of Autism Spectrum Disorder and Co-morbidities in Children and Adolescents: A Systematic Literature Review [J].
Bougeard, Clemence ;
Picarel-Blanchot, Francoise ;
Schmid, Ramona ;
Campbell, Rosanne ;
Buitelaar, Jan .
FRONTIERS IN PSYCHIATRY, 2021, 12
[8]  
Carley M.J., 2022, RE PLEASE BOYCOTT AU
[9]  
Donnelly J., 2022, YOUR WORK IS FUCKING
[10]   First Do No Harm: Suggestions Regarding Respectful Autism Language [J].
Dwyer, Patrick ;
Ryan, Jacalyn G. ;
Williams, Zachary J. ;
Gassner, Dena L. .
PEDIATRICS, 2022, 149