Catalyzing dementia care through the learning health system and consumer health information technology

被引：19

作者：

Wolff, Jennifer L. ^{[1
,10
]}

DesRoches, Catherine M. ^{[2
]}

Amjad, Halima ^{[3
]}

Burgdorf, Julia G. ^{[4
]}

Caffrey, Melanie ^{[5
]}

Fabius, Chanee D. ^{[1
]}

Gleason, Kelly T. ^{[6
]}

Green, Ariel R. ^{[3
]}

Lin, Chen-Tan ^{[7
]}

Nothelle, Stephanie K. ^{[3
]}

Peereboom, Danielle ^{[1
]}

Powell, Danielle S. ^{[1
]}

Riffin, Catherine A. ^{[8
]}

Lum, Hillary D. ^{[9
]}

机构：

[1] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Hlth Policy & Management, Baltimore, MD USA

[2] Harvard Med Sch, OpenNotes Beth Israel Deaconess Med Ctr, Dept Med, Boston, MA USA

[3] Johns Hopkins Univ, Div Geriatr Med & Gerontol, Sch Med, Baltimore, MD USA

[4] Visiting Nurse Serv New York, Ctr Home Care Policy & Res, New York, NY USA

[5] Columbia Univ, Comp Technol & Applicat Program, Springer Sci Business Media LLC, Oracle Magazine, New York, NY USA

[6] Johns Hopkins Univ, Sch Nursing, Baltimore, MD USA

[7] Univ Colorado, Aurora, CO USA

[8] Weill Cornell Med Ctr, Div Geriatr & Palliat Med, New York, NY USA

[9] Univ Colorado, Div Geriatr Med, Sch Med, Aurora, CO USA

[10] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Hlth Policy & Management, 624 N Broadway,Room 692, Baltimore, MD 21205 USA

来源：

ALZHEIMERS & DEMENTIA | 2023年 / 19卷 / 05期

基金：

美国国家卫生研究院;

关键词：

dementia; health equity; implementation science; learning health system; patient portal; OLDER-ADULTS; COGNITIVE IMPAIRMENT; CLINICAL-TRIALS; ALZHEIMERS; IMPLEMENTATION; INDIVIDUALS; PERSPECTIVE; BEHAVIORS; VETERANS; VISITS;

D O I：

10.1002/alz.12918

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

To advance care for persons with Alzheimer's disease and related dementias (ADRD), real-world health system effectiveness research must actively engage those affected to understand what works, for whom, in what setting, and for how long-an agenda central to learning health system (LHS) principles. This perspective discusses how emerging payment models, quality improvement initiatives, and population health strategies present opportunities to embed best practice principles of ADRD care within the LHS. We discuss how stakeholder engagement in an ADRD LHS when embedding, adapting, and refining prototypes can ensure that products are viable when implemented. Finally, we highlight the promise of consumer-oriented health information technologies in supporting persons living with ADRD and their care partners and delivering embedded ADRD interventions at scale. We aim to stimulate progress toward sustainable infrastructure paired with person- and family-facing innovations that catalyze broader transformation of ADRD care.

引用

页码：2197 / 2207

页数：11

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