The role of general practitioners in Reunion in detecting alcohol use in pregnant women and identifying fetal alcohol spectrum disorder: a qualitative study

被引:0
作者
Leruste, Sebastien [1 ,2 ]
Delfarguiel, Louise [1 ]
Doray, Berenice [1 ,2 ,3 ,4 ,5 ]
Loubaresse, Coralie [1 ]
Sennsfelder, Laetitia [2 ,3 ]
Maillard, Thierry [6 ]
Marimoutou, Catherine [1 ,2 ]
Spodenkiewicz, Michel [1 ,2 ,7 ,8 ]
机构
[1] Univ Reunion, UFR Sante, F-97410 St Pierre, France
[2] CHU Reunion, INSERM CIC 1410, St Pierre, France
[3] CHU Reunion, Serv Genet, St Denis, France
[4] Univ & CHU Reunion, Lab EPI, St Denis, France
[5] CHU Reunion, Ctr Ressources TSAF, Fdn Pere Favron, St Pierre, France
[6] SAF Ocean India, St Louis, France
[7] INSERM, Moods Team, CESP, UMR 1178, Le Kremlin Bicetre, France
[8] McGill Univ, Douglas Mental Hlth Univ Inst, Dept Psychiat, McGill Grp Suicide Studies, Montreal, PQ, Canada
关键词
Fetal alcohol spectrum disorders; General practitioners; Qualitative research; CHILDBEARING AGE; HEALTH; CARE;
D O I
10.1186/s13690-023-01221-0
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
BackgroundFetal Alcohol Spectrum Disorder (FASD) is the leading cause of non-genetic intellectual disability and social maladjustment in children. International guidelines recommend abstinence from alcohol during pregnancy. Reunion is the most affected of all French regions with an estimated Fetal Alcohol Spectrum (FAS) prevalence of 1.2 parts per thousand births. General practitioners (GPs) are at the forefront of identifying patients with FASD. Objective: To understand how GPs identify FASD.MethodsQualitative study using a grounded theory approach, through semi-structured face-to-face interviews with GPs. Interviews were conducted with the aim of reaching theoretical saturation. These were transcribed verbatim and then analyzed by four researchers to ensure triangulation of the data.ResultsGPs reported barriers to the identification of FASD: challenges in overcoming social taboos and paradoxical injunctions, the influence of limited knowledge and experience, non-specific and highly variable symptoms, ambiguous classification and method of diagnosis involving the mobilization of a multidisciplinary team and lengthy consultations. Conversely, they felt competent to identify neurodevelopmental disorders of any cause, but were concerned about the long waiting time to access specialized care. From the perspective of GPs, it is crucial to prioritize promotion and training aimed at improving the identification and coordination of care pathways for children diagnosed with neurodevelopmental disorders, such as FASD.
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