Life Experiences of Patients With Multiple Sclerosis About Their Spasticity: A Phenomenological Study

被引:3
|
作者
Ozkan, Ilknur [1 ]
Dunya, Cansu Polat [2 ]
Demir, Serkan [3 ]
机构
[1] Akdeniz Univ, Kumluca Fac Hlth Sci, Dept Med Nursing, Antalya, Turkey
[2] Istanbul Univ, Fac Nursing, Dept Med Nursing, Istanbul, Turkey
[3] Sancaktepe Sehit Prof Dr Ilhan Varank Training &, Dept Neurol, Istanbul, Turkey
关键词
spasticity; life experience; multiple sclerosis; diseases; clinical research areas; qualitative study; MANAGEMENT; IMPACT; RELIABILITY; PEOPLE; SCALE;
D O I
10.1177/10547738221119346
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Spasticity is one of the main symptoms that is most common in patients with Multiple Sclerosis and causes increased disability. The aim of this study is to understand the experiences of patients with Multiple Sclerosis about their spasticity from their perspective. This study was conducted as a qualitative study with a Hermeneutic phenomenological framework. The data were evaluated by using VanManen's thematic analysis method. As a result of the data analysis, four main themes were elicited, namely, "the meaning of spasticity for the patient," "the difficulties of living with spasticity," 'coping with spasticity," and "the new me created by spasticity." It was understood that spasticity is a symptom that brings about difficulties in psychological, social, and working life as well as physical difficulties. Nurses should be aware of the psychological symptoms as well as the physical symptoms that patients experience due to spasticity and should create a patient-specific management program.
引用
收藏
页码:49 / 59
页数:11
相关论文
共 50 条
  • [41] Importance and treatment of spasticity in multiple sclerosis. Results of the MOVE 1 study
    Henze, T.
    Flachenecker, P.
    Zettl, U. K.
    NERVENARZT, 2013, 84 (02): : 214 - 222
  • [42] Effects of Dry Needling on Gastrocnemius Muscle Spasticity and Gait in Patients with Multiple Sclerosis: A Pilot Randomized Controlled Trial
    Motamedzadeh, Omid
    Ansari, Noureddin Nakhostin
    Naghdi, Soofia
    Azimi, Amirreza
    Mahmoudzadeh, Ashraf
    Salehi, Saman
    Bahadorani, Nastaran
    Calvo, Sandra
    Herrero, Pablo
    MEDICAL ACUPUNCTURE, 2024, 36 (05) : 272 - 281
  • [43] Quality of life assessment in patients with multiple sclerosis
    Tepavcevic, Darija Kisic
    Pekmezovic, Tatjana
    Drulovic, Jelena
    VOJNOSANITETSKI PREGLED, 2009, 66 (08) : 645 - 650
  • [44] Patients experiences with multiple sclerosis disease-modifying therapies in daily life – a qualitative interview study
    Anna Sippel
    Karin Riemann-Lorenz
    Jutta Scheiderbauer
    Ingo Kleiter
    Rebecca Morrison
    Christopher Kofahl
    Christoph Heesen
    BMC Health Services Research, 21
  • [45] Advances in the management of multiple sclerosis spasticity: multiple sclerosis spasticity guidelines
    Gold, Ralf
    Oreja-Guevara, Celia
    EXPERT REVIEW OF NEUROTHERAPEUTICS, 2013, 13 (12) : 55 - 59
  • [46] Cortical and spinal excitability in patients with multiple sclerosis and spasticity after oromucosal cannabinoid spray
    Squintani, Giovanna
    Donato, Francesco
    Turri, Mara
    Deotto, Luciano
    Teatini, Francesco
    Moretto, Giuseppe
    Erro, Roberto
    JOURNAL OF THE NEUROLOGICAL SCIENCES, 2016, 370 : 263 - 268
  • [47] Transcranial direct current stimulation for spasticity in patients with multiple sclerosis: Exploring novel routes
    El Habashy, Hala Rashad
    El Sawy, Noha
    Al Menabbawy, Shahenda
    Dahshan, Ahmed
    MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2022, 67
  • [48] The high cost of spasticity in multiple sclerosis to individuals and society
    Stevenson, V. L.
    Gras, A.
    Bardos, J. I.
    Broughton, J.
    MULTIPLE SCLEROSIS JOURNAL, 2015, 21 (12) : 1583 - 1592
  • [49] Efficacy and safety of nabiximols (Sativex®) on multiple sclerosis spasticity in a real-life Italian monocentric study
    Laura Ferrè
    Arturo Nuara
    Giulia Pavan
    Marta Radaelli
    Lucia Moiola
    Mariaemma Rodegher
    Bruno Colombo
    Ignacio Juan Keller Sarmiento
    Vittorio Martinelli
    Letizia Leocani
    Filippo Martinelli Boneschi
    Giancarlo Comi
    Federica Esposito
    Neurological Sciences, 2016, 37 : 235 - 242
  • [50] Efficacy and safety of nabiximols (Sativex®) on multiple sclerosis spasticity in a real-life Italian monocentric study
    Ferre, Laura
    Nuara, Arturo
    Pavan, Giulia
    Radaelli, Marta
    Moiola, Lucia
    Rodegher, Mariaemma
    Colombo, Bruno
    Sarmiento, Ignacio Juan Keller
    Martinelli, Vittorio
    Leocani, Letizia
    Boneschi, Filippo Martinelli
    Comi, Giancarlo
    Esposito, Federica
    NEUROLOGICAL SCIENCES, 2016, 37 (02) : 235 - 242