spasticity;
life experience;
multiple sclerosis;
diseases;
clinical research areas;
qualitative study;
MANAGEMENT;
IMPACT;
RELIABILITY;
PEOPLE;
SCALE;
D O I:
10.1177/10547738221119346
中图分类号:
R47 [护理学];
学科分类号:
1011 ;
摘要:
Spasticity is one of the main symptoms that is most common in patients with Multiple Sclerosis and causes increased disability. The aim of this study is to understand the experiences of patients with Multiple Sclerosis about their spasticity from their perspective. This study was conducted as a qualitative study with a Hermeneutic phenomenological framework. The data were evaluated by using VanManen's thematic analysis method. As a result of the data analysis, four main themes were elicited, namely, "the meaning of spasticity for the patient," "the difficulties of living with spasticity," 'coping with spasticity," and "the new me created by spasticity." It was understood that spasticity is a symptom that brings about difficulties in psychological, social, and working life as well as physical difficulties. Nurses should be aware of the psychological symptoms as well as the physical symptoms that patients experience due to spasticity and should create a patient-specific management program.
机构:
Univ Versailles St Quentin, Hop R Poincare, AP HP, Serv Med Phys & Readaptat,EA 4497, F-92380 Garches, FranceUniv Versailles St Quentin, Hop R Poincare, AP HP, Serv Med Phys & Readaptat,EA 4497, F-92380 Garches, France
Bensmail, D.
Vermersch, P.
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机构:
Univ Lille Nord France, CHU Lille, Hop Roger Salengro, Clin Neurol,EA2686, F-59037 Lille, FranceUniv Versailles St Quentin, Hop R Poincare, AP HP, Serv Med Phys & Readaptat,EA 4497, F-92380 Garches, France
机构:
Virginia Mason Med Ctr, Dept Phys Med & Inpatient Neuro Rehabil, Seattle, WA 98111 USAVirginia Mason Med Ctr, Dept Phys Med & Inpatient Neuro Rehabil, Seattle, WA 98111 USA
Hughes, Christina
Howard, Ileana M.
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机构:
Vet Affairs Puget Sound Hlth Care Syst, Rehabil Care Serv, Seattle, WA 98108 USAVirginia Mason Med Ctr, Dept Phys Med & Inpatient Neuro Rehabil, Seattle, WA 98111 USA
机构:
Univ Texas Southwestern Med Ctr, Dallas, TX 75390 USA
UT Southwestern Med Ctr, Dept Neurol, Neuroinnovat Program, Multiple Sclerosis & Neuroimmunol Imaging Program, 5303 Harry Hines Blvd, Dallas, TX 75390 USAUniv Texas Southwestern Med Ctr, Dallas, TX 75390 USA
Okuda, Darin T.
Kantor, Daniel
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机构:
Florida Atlantic Univ, Boca Raton, FL 33431 USA
Nova Southeastern Univ, Ft Lauderdale, FL 33314 USAUniv Texas Southwestern Med Ctr, Dallas, TX 75390 USA
Kantor, Daniel
Jaros, Mark
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机构:
Summit Analyt, Denver, CO 80238 USAUniv Texas Southwestern Med Ctr, Dallas, TX 75390 USA
Jaros, Mark
de Vries, Tina
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机构:
RVL Pharmaceut Inc, Bridgewater, NJ 08807 USAUniv Texas Southwestern Med Ctr, Dallas, TX 75390 USA
de Vries, Tina
Hunter, Samuel
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机构:
Adv Neurosci Inst, Franklin, TN 37064 USAUniv Texas Southwestern Med Ctr, Dallas, TX 75390 USA
机构:
Karolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Karolinska Inst, Dept Med Solna, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Smith, Kelsi A.
Piehl, Fredrik
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机构:
Karolinska Inst, Clin Neurosci, Stockholm, Sweden
Karolinska Univ Hosp, Ctr Mol Med, Stockholm, Sweden
SLSO, Acad Specialist Ctr, Ctr Neurol, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Piehl, Fredrik
Olsson, Tomas
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机构:
Karolinska Inst, Clin Neurosci, Stockholm, Sweden
Karolinska Univ Hosp, Ctr Mol Med, Stockholm, Sweden
SLSO, Acad Specialist Ctr, Ctr Neurol, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Olsson, Tomas
Alfredsson, Lars
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机构:
Karolinska Inst, Clin Neurosci, Stockholm, Sweden
Karolinska Univ Hosp, Ctr Mol Med, Stockholm, Sweden
Ctr Occupat & Environm Med, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Alfredsson, Lars
Hillert, Jan
论文数: 0引用数: 0
h-index: 0
机构:
Karolinska Inst, Clin Neurosci, Stockholm, Sweden
Karolinska Univ Hosp, Ctr Mol Med, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Hillert, Jan
Kockum, Ingrid
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机构:
Karolinska Inst, Clin Neurosci, Stockholm, Sweden
Karolinska Univ Hosp, Ctr Mol Med, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Kockum, Ingrid
Strid, Pernilla
论文数: 0引用数: 0
h-index: 0
机构:
Karolinska Inst, Clin Neurosci, Stockholm, Sweden
Karolinska Univ Hosp, Ctr Mol Med, Stockholm, SwedenKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Strid, Pernilla
Montgomery, Scott
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机构:
Karolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden
Orebro Univ, Fac Med & Hlth, Sch Med Sci, Clin Epidemiol & Biostat, Orebro, Sweden
UCL, Dept Epidemiol & Publ Hlth, London, EnglandKarolinska Inst, Dept Med Solna, Clin Epidemiol Div, Stockholm, Sweden