Integration of migrant and refugee data in health information systems in Europe: advancing evidence, policy and practice

被引:14
作者
Bozorgmehr, Kayvan [1 ,2 ,3 ,22 ]
McKee, Martin [4 ,5 ]
Azzopardi-Muscat, Natasha [6 ]
Bartovic, Jozef [6 ]
Campos-Matos, Ines [7 ]
Gerganova, Tsvetelina-Ivanova [8 ]
Hannigan, Ailish [9 ]
Jankovic, Jelena [10 ]
Kallayova, Daniela [3 ,11 ,21 ]
Kaplan, Josiah [12 ]
Kayi, Ilker [13 ]
Kondilis, Elias [14 ]
Lundberg, Lene [3 ,15 ]
de la Mata, Isabel [8 ]
Medarevic, Aleksandar
Suvada, Jozef [16 ,17 ,18 ]
Wickramage, Kolitha [19 ]
Puthoopparambil, Soorej Jose [20 ]
机构
[1] Bielefeld Univ, Sch Publ Hlth, Dept Populat Med & Hlth Serv Res, Bielefeld, Germany
[2] Univ Hosp Heidelberg, Sect Hlth Equ Studies & Migrat, Heidelberg, Germany
[3] Lancet Migrat European Hub, London, England
[4] European Observ Hlth Syst & Pol, London, England
[5] London Sch Hyg & Trop Med, London, England
[6] WHO Reg Off Europe, Copenhagen, Denmark
[7] Off Hlth Improvement & Dispar, Dept Hlth & Social Care, London, England
[8] European Commiss, DG Hlth & Food Safety, Brussels, Belgium
[9] Univ Limerick, WHO Collaborating Ctr Migrants Involvement Hlth Re, Sch Med, Limerick, Ireland
[10] Minist Hlth Serbia, Belgrade, Serbia
[11] Minist Hlth, Dept Publ Hlth Screening & Prevent, Trnava, Slovakia
[12] UNICEF Global Off Res & Foresight, Florence, Italy
[13] Koc Univ, Sch Med, Dept Publ Hlth, Istanbul, Turkiye
[14] Aristotle Univ Thessaloniki, Fac Hlth Sci, Sch Med, Thessaloniki, Greece
[15] Norwegian Ctr Ehlth Res, Tromso, Norway
[16] St Elizabeth Univ, Publ Hlth & Social Work, Bratislava, Slovakia
[17] McMaster Univ, WHO Collaborating Ctr Infect Dis, Res Methods & Recommendat, Hamilton, ON, Canada
[18] McMaster Univ, McMaster GRADE Ctr, Dept Hlth Res Methods Evidence & Impact, Hamilton, ON, Canada
[19] Int Org Migrat, UN Migrat Agcy Global Data Inst, Migrat Hlth Div, Berlin, Germany
[20] Uppsala Univ, WHO Collaborating Ctr Migrat & Hlth Data & Evidenc, Dept Women & Childrens Hlth, Global Hlth & Migrat Unit, Uppsala, Sweden
[21] Trnava Univ, Trnava, Slovakia
[22] Bielefeld Univ, Sch Publ Hlth, Dept Populat Med & Hlth Serv Res, Univ Str 25, D-33501 Bielefeld, Germany
来源
LANCET REGIONAL HEALTH-EUROPE | 2023年 / 34卷
关键词
Health information system; Health policy; Migration; Data linkage; Health monitoring surveys; Health equity; MIGRATION; CARE; COVID-19; ACCESS; ASYLUM; GERMANY; ENGLAND; TURKEY;
D O I
10.1016/j.lanepe.2023.100744
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Coverage of migrant and refugee data is incomplete and of insufficient quality in European health information systems. This is not because we lack the knowledge or technology. Rather, it is due to various political factors at local, national and European levels, which hinder the implementation of existing knowledge and guidelines. This reflects the low political priority given to the topic, and also complex governance challenges associated with migration and displacement. We review recent evidence, guidelines, and policies to propose four approaches that will advance science, policy, and practice. First, we call for strategies that ensure that data is collected, analyzed and disseminated systematically. Second, we propose methods to safeguard privacy while combining data from multiple sources. Third, we set out how to enable survey methods that take account of the groups' diversity. Fourth, we emphasize the need to engage migrants and refugees in decisions about their own health data. Based on these approaches, we propose a change management approach that narrows the gap between knowledge and action to create healthcare policies and practices that are truly inclusive of migrants and refugees. We thereby offer an agenda that will better serve public health needs, including those of migrants and refugees and advance equity in European health systems.Funding No specific funding received.Copyright (c) 2023 Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND IGO license (http://creativecommons.org/licenses/by-nc-nd/3.0/igo/).
引用
收藏
页数:16
相关论文
共 162 条
[1]   The UCL-Lancet Commission on Migration and Health: the health of a world on the move [J].
Abubakar, Ibrahim ;
Aldridge, Robert W. ;
Devakumar, Delan ;
Orcutt, Miriam ;
Burns, Rachel ;
Barreto, Mauricio L. ;
Dhavan, Poonam ;
Fouad, Fouad M. ;
Groce, Nora ;
Guo, Yan ;
Hargreaves, Sally ;
Knipper, Michael ;
Jaime Miranda, J. ;
Madise, Nyovani ;
Kumar, Bernadette ;
Mosca, Davide ;
McGovern, Terry ;
Rubenstein, Leonard ;
Sammonds, Peter ;
Sawyer, Susan M. ;
Sheikh, Kabir ;
Tollman, Stephen ;
Spiegel, Paul ;
Zimmerman, Cathy ;
Abbas, Mustafa ;
Acer, Eleanor ;
Ahmad, Ayesha ;
Ahmed, Bayes ;
Abimbola, Seye ;
Beltran, Juan D. ;
Blanchet, Karl ;
Bocquier, Philippe ;
Samuels, Fiona ;
Byrne, Olga ;
Haerizadeh, Sonia ;
Issa, Rita ;
Collinson, Mark ;
Ginsburg, Carren ;
Kelman, Ilan ;
McAlpine, Alys ;
Pocock, Nicola ;
Olshansky, Barbara ;
Ramos, Dandara ;
Stavrianaki, Katerina ;
White, Michael ;
Zhou, Suzanne .
LANCET, 2018, 392 (10164) :2606-2654
[2]  
Agamben G, 2012, Homo sacer: Die souverane Macht und das nackte Leben
[3]   Asylum, Identity Management and Biometric Control [J].
Ajana, Btihaj .
JOURNAL OF REFUGEE STUDIES, 2013, 26 (04) :576-595
[4]   Tuberculosis in migrants moving from high-incidence to low-incidence countries: a population-based cohort study of 519 955 migrants screened before entry to England, Wales, and Northern Ireland [J].
Aldridge, Robert W. ;
Zenner, Dominik ;
White, Peter J. ;
Williamson, Elizabeth J. ;
Muzyamba, Morris C. ;
Dhavan, Poonam ;
Mosca, Davide ;
Thomas, H. Lucy ;
Lalor, Maeve K. ;
Abubakar, Ibrahim ;
Hayward, Andrew C. .
LANCET, 2016, 388 (10059) :2510-2518
[5]   The Impact of Pre- and Postarrival Mechanisms on Self-rated Health and Life Satisfaction Among Refugees in Germany [J].
Ambrosetti, Elena ;
Dietrich, Hans ;
Kosyakova, Yuliya ;
Patzina, Alexander .
FRONTIERS IN SOCIOLOGY, 2021, 6
[6]   Extremely Randomized Trees With Privacy Preservation for Distributed Structured Health Data [J].
Aminifar, Amin ;
Shokri, Matin ;
Rabbi, Fazle ;
Pun, Violet Ka I. ;
Lamo, Yngve .
IEEE ACCESS, 2022, 10 :6010-6027
[7]  
[Anonymous], 2010, CONVENTION PROTOCOL
[8]  
[Anonymous], 2022, World Migration Report 2022
[9]  
[Anonymous], 2019, INT ORG MIGRATION
[10]   Towards Distributed Healthcare Systems - Virtual Data Pooling Between Cancer Registries as Backbone of Care and Research [J].
Appenzeller, Arno ;
Bartholomaus, Sebastian ;
Breitschwerdt, Rudiger ;
Claussen, Carsten ;
Geisler, Sandra ;
Hartz, Tobias ;
Kachel, Philipp ;
Krempel, Erik ;
Robert, Sebastian ;
Zeissig, Sylke Ruth .
2021 IEEE/ACS 18TH INTERNATIONAL CONFERENCE ON COMPUTER SYSTEMS AND APPLICATIONS (AICCSA), 2021,