The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

被引：3
作者：
McLaughlin, Danielle [1 ]
Semrov, Ana [2 ,3 ]
Munshi, Hounsh F. [1 ]
Patel, Annika [1 ]
Rahi, Jugnoo [2 ,3 ,4 ,5 ]
Grajewski, Alana [1 ]
Balkan CGRN Study Grp
机构：
[1] Univ Miami, Bascom Palmer Eye Inst, Miller Sch Med, Miami, FL 33136 USA
[2] UCL, GOS Inst Child Hlth, Populat Policy & Practice Res & Teaching Dept, London, England
[3] Ulverscroft Vis Res Grp UCL, London, England
[4] Great Ormond St Hosp NHS Fdn, London, England
[5] Inst Ophthalmol UCL, London, England
来源：
EYE | 2023年 / 37卷 / 15期
关键词：
CHRONIC PHYSICAL ILLNESS; CONGENITAL GLAUCOMA; VISUAL IMPAIRMENT; CHILDREN; VISION; HEALTH; CAREGIVERS; ADOLESCENTS; ADJUSTMENT; SECONDARY;
D O I：
10.1038/s41433-023-02492-1
中图分类号：
R77 [眼科学];
学科分类号：
100212 ;
摘要：
We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.
引用
收藏
页码：3157 / 3173
页数：17
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