Patient and provider-level drivers of healthcare utilization related to a diagnosis of a precancerous condition: monoclonal gammopathy of undetermined significance (MGUS)

被引：0

作者：

Castaneda-Avila, Maira A. ^{[1
]}

Mazor, Kathleen M. ^{[2
,3
]}

Lapane, Kate L. ^{[1
]}

Epstein, Mara M. ^{[2
,3
]}

机构：

[1] Univ Massachusetts, Chan Med Sch, Dept Populat & Quantitat Hlth Sci, 368 Plantat St,A6-1065O, Worcester, MA 01605 USA

[2] Joint Endeavor Univ Massachusetts, Meyers Hlth Care Inst, Fallon Hlth & Reliant Med Grp, Chan Med Sch, Worcester, MA USA

[3] Univ Massachusetts, Chan Med Sch, Dept Med, Div Hlth Syst Sci, Worcester, MA USA

来源：

CANCER CAUSES & CONTROL | 2023年 / 34卷 / 05期

关键词：

Adult; Monoclonal gammopathy of undetermined significance; Multiple myeloma patients; Precancerous conditions; Qualitative research; United States; MULTIPLE-MYELOMA; FOLLOW-UP; CLINICAL-SIGNIFICANCE; LONG-TERM; POPULATION; SURVIVAL; PROGRESSION; MORTALITY; PROTEINS; PATTERNS;

D O I：

10.1007/s10552-023-01675-1

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

PurposeMonoclonal gammopathy of undetermined significance (MGUS) is the precursor of multiple myeloma. This qualitative study described patient (n = 14) experiences and healthcare providers' (n = 8) opinions and practices concerning care for patients with MGUS in the US.MethodsSemi-structured, in-depth interviews were analyzed using thematic analysis.ResultsWe identified six overarching themes related to the care pathway for patients with MGUS: (1) Process of MGUS diagnosis, (2) Providers' explanations, (3) Patients' understanding, (4) Impact of the diagnosis, (5) Follow-up/management, and (6) Factors influencing healthcare utilization. Patients demonstrated a basic understanding of MGUS. However, some patients felt anxiety around the diagnosis, which may affect other aspects of their lives. Non-hematologist providers report having less MGUS-specific knowledge. Older age, high-risk MGUS, and insurance coverage/healthcare costs influenced healthcare utilization.ConclusionPatients with MGUS may have difficulty processing this premalignant diagnosis. Non-hematologist providers may have gaps in knowledge around specific care for patients with MGUS.

引用

页码：449 / 457

页数：9

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