BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: an electronic Delphi study

被引：1

作者：

Cheung, Christabel K. ^{[1
]}

Miller, Kimberly A. ^{[2
]}

Goings, Trenette Clark ^{[3
]}

Thomas, Bria N. ^{[4
]}

Lee, Haelim ^{[1
]}

Brandon, Rachel E. ^{[5
]}

Katerere-Virima, Thuli ^{[1
]}

Helbling, Laura E. ^{[1
]}

Causadias, Jose M. ^{[6
]}

Roth, Michael E. ^{[7
]}

Berthaud, Frantz M. ^{[8
]}

Jones, Laundette P. ^{[9
]}

Ross, Valentina A. ^{[1
]}

Betz, Gail D. ^{[10
]}

Simmons, Cole D. ^{[11
]}

Carter, Jay ^{[1
]}

Davies, Simon J. ^{[12
]}

Gilman, Megan L. ^{[13
]}

Lewis, Mark A. ^{[14
]}

Lopes, Gilberto ^{[15
]}

Tucker-Seeley, Reginald D. ^{[16
]}

机构：

[1] Univ Maryland, Sch Social Work, Baltimore, MD 21201 USA

[2] Univ Southern Calif, Keck Sch Med, Dept Prevent Med & Dermatol, Los Angeles, CA 90033 USA

[3] Univ N Carolina, Sch Social Work, Chapel Hill, NC 27516 USA

[4] Temple Univ, Sch Podiatr Med, Philadelphia, PA 19107 USA

[5] Univ Michigan, Sch Social Work, Ann Arbor, MI 48109 USA

[6] Arizona State Univ, T Denny Sanford Sch Social & Family Dynam, Tempe, AZ 85287 USA

[7] Univ Texas MD Anderson Canc Ctr, Dept Pediat, Houston, TX 77030 USA

[8] Hosp Providence, El Paso, TX 79938 USA

[9] Univ Maryland, Sch Med, Baltimore, MD 21201 USA

[10] Univ Maryland, Baltimore Hlth Sci & Human Serv Lib, Baltimore, MD 21201 USA

[11] Bryn Mawr Grad Sch Social Work & Social Res, Bryn Mawr, PA 19010 USA

[12] Teen Canc Amer, Los Angeles, CA 90064 USA

[13] Mem Sloan Kettering Canc Ctr, AYA Psychiat, New York, NY 10065 USA

[14] Intermt Healthcare, Dept Gastrointestinal Oncol, Salt Lake City, UT 84107 USA

[15] Univ Miami, Miller Sch Med, Sylvester Comprehens Canc Ctr, Miami, FL 33136 USA

[16] Hlth Equ Strategies & Solut, Los Angeles, CA 90008 USA

来源：

FUTURE ONCOLOGY | 2024年 / 20卷 / 09期

关键词：

AYA; BIPOC; patient engagement; real-world evidence; survivorship; young adult; HEALTH-SERVICES; COVID-19; DISPARITIES;

D O I：

10.2217/fon-2023-0771

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Aims: To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials & methods: Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Results: Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. Conclusion: The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.

引用

页码：547 / 561

页数：15

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