End of life care in a level IV outborn neonatal intensive care unit

被引：3

作者：

Groden, Catherine M. ^{[1
]}

Raed, Mona ^{[2
]}

Helft, Paul ^{[3
]}

Allen, Jayme D. ^{[4
]}

机构：

[1] Univ Chicago, Sect Neonatol, Chicago, IL 60637 USA

[2] Community Hlth Network, Div Palliat Care, Indianapolis, IN USA

[3] Indiana Univ Sch Med, Div Hematol Oncol, Indianapolis, IN USA

[4] Indiana Univ Sch Med, Div Neonatal Perinatal Med, Indianapolis, IN USA

来源：

JOURNAL OF PERINATOLOGY | 2024年 / 44卷 / 07期

关键词：

OF-LIFE; DEATH; INFANTS; CIRCUMSTANCES; EXPERIENCE; PROGRAM; HEALTH; MODES;

D O I：

10.1038/s41372-024-01930-6

中图分类号：

R71 [妇产科学];

学科分类号：

100211 ;

摘要：

ObjectiveDescribe care surrounding the end of life (EOL) in the neonatal intensive care unit (NICU).Study designRetrospective chart review of 208 infants who died in a level IV referral-only NICU over 5 years.ResultsA goals of care (GOC) conversation was documented before the day of death for 63% of infants. 73% died following withdrawal of life-sustaining treatment (WD); 13% died in a code. The median age at death was 17.5 days. 72% were held by a parent at EOL. 94% of families desired formal memory-making. We identified associations with mode of death and parental holding at death, including: WD was associated with palliative care consultation, early GOC conversations, and increased unit-specific length of stay. Holding was associated with chaplain visits, memory-making, and increased home-to-hospital distance.ConclusionWe present a detailed description of EOL care in an outborn NICU, including novel data on parental holding and memory-making.

引用

页码：1022 / 1028

页数：7

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