Challenges and strategies to improve the provision of end-of-life cancer care in rural and regional communities: Perspectives from Australian rural health professionals

被引:3
作者
Cerni, Jessica [1 ,4 ]
Rhee, Joel [2 ,3 ]
Hosseinzadeh, Hassan [1 ]
机构
[1] Univ Wollongong, Fac Arts Soc Sci & Humanities, Sch Hlth, Wollongong, NSW, Australia
[2] Univ New South Wales, Sch Populat Hlth, Sydney, NSW, Australia
[3] Univ Wollongong, Grad Sch Med, Wollongong, NSW, Australia
[4] Univ Wollongong, Northfields Ave, Wollongong, NSW 2522, Australia
关键词
cancer; end-of-life care; palliative care; primary care; rural health services; PALLIATIVE CARE; GENERAL-PRACTITIONERS; FAMILY PHYSICIANS; PREFERENCES; TEAM;
D O I
10.1111/ajr.13001
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
ObjectiveTo identify challenges and strategies to improve the provision of end-of-life (EOL) cancer care in an underserved rural and regional Australian local health district (LHD) from the perspective of general practitioners (GPs) and specialist clinicians while exploring the benefits of adopting a generalist health care approach to delivering EOL care in rural and regional communities. SettingRural and regional Australia. ParticipantsGeneral practitioners and palliative care and cancer care specialists (medical and nursing) involved in the provision of EOL care to people with advanced cancer in the rural and regional areas of an Australian LHD. DesignQualitative descriptive study involving 22 participants in four face-to-face and online focus groups. Thematic analysis of the transcripts identified key issues affecting EOL care for people with advanced cancer in rural and regional areas of the LHD. ResultsFour themes including geographical remoteness, system structures, medical management and expertise and training emerged from the focus groups. Key barriers to effective EOL care included insufficient remuneration for GPs and other clinicians (especially home visits), resource limitations, limited community awareness of palliative care and lack of confidence and training of clinicians. Continuity of care was identified as an important facilitator to effective EOL care. Participants suggested greater Medicare rebates for palliative care and home visits, adequate equipment and resources, technology-enabled clinician training and greater rural-based training for specialist PC clinicians may improve the provision of EOL care in regional and rural communities. ConclusionsRural-based clinicians delivering EOL cancer care appear to be disproportionately affected by geographical challenges including resource and funding limitations. A multi-pronged strategy aimed at greater interdisciplinary collaboration, community awareness and greater resourcing and funding could help to improve the provision of EOL care in underserved rural and remote communities of Australia.
引用
收藏
页码:714 / 725
页数:12
相关论文
共 37 条
[1]   Are family physician visits and continuity of care associated with acute care use at end-of-life? A population-based cohort study of homecare cancer patients [J].
Almaawiy, Ummukulthum ;
Pond, Gregory R. ;
Sussman, Jonathan ;
Brazil, Kevin ;
Seow, Hsien .
PALLIATIVE MEDICINE, 2014, 28 (02) :176-183
[2]   Purposive sampling in a qualitative evidence synthesis: a worked example from a synthesis on parental perceptions of vaccination communication [J].
Ames, Heather ;
Glenton, Claire ;
Lewin, Simon .
BMC MEDICAL RESEARCH METHODOLOGY, 2019, 19 (1)
[3]  
[Anonymous], 2017, Research into Awareness, Attitudes and Provision of Best Practice Advance Care Planning, Palliative Care and End of Life Care within General Practice
[4]  
Australian Government, 2022, MEDICARE BENEFITS SC
[5]  
Australian Institute of Health and Welfare, 2017, RURAL REMOTE HEALTH
[6]   Family physicians' role in palliative care throughout the care continuum: stakeholder perspectives [J].
Beernaert, Kim ;
Van den Block, Lieve ;
Van Thienen, Katrien ;
Devroey, Dirk ;
Pardon, Koen ;
Deliens, Luc ;
Cohen, Joachim .
FAMILY PRACTICE, 2015, 32 (06) :694-700
[7]   The Multidisciplinary Team in Palliative Care: A Case Reflection [J].
Bowen, Liza .
INDIAN JOURNAL OF PALLIATIVE CARE, 2014, 20 (02) :142-145
[8]  
Connor S., 2014, GLOBAL ATLAS PALLIAT, P2014
[9]   Determining validity in qualitative inquiry [J].
Creswell, JW ;
Miller, DL .
THEORY INTO PRACTICE, 2000, 39 (03) :124-130
[10]   Involvement of general practitioners in palliative cancer care: a qualitative study [J].
Dahlhaus, Anne ;
Vanneman, Nicholas ;
Siebenhofer, Andrea ;
Brosche, Marie ;
Guethlin, Corina .
SUPPORTIVE CARE IN CANCER, 2013, 21 (12) :3293-3300