The roles of adult siblings of individuals with a profound intellectual disability

被引：3

作者：

Dorsman, Naomi I. ^{[1
,2
,5
]}

Waninge, Aly ^{[1
,2
]}

van Der Schans, Cees P. ^{[1
,2
,3
]}

Luijkx, Jorien ^{[4
]}

Van Der Putten, Annette A. J. ^{[4
]}

机构：

[1] Hanze Univ Appl Sci Groningen, Res Grp Hlth Ageing Allied Hlth Care & Nursing, Groningen, Netherlands

[2] Univ Med Ctr Groningen, Dept Hlth Psychol, Groningen, Netherlands

[3] Univ Med Ctr Groningen, Dept Rehabil Med, Groningen, Netherlands

[4] Univ Groningen, Dept Inclus & Special Needs Educ, Groningen, Netherlands

[5] Res Grp Hlth Ageing Allied Hlth Care & Nursing, Petrus Driessenstr 3, NL-9714 CA Groningen, Netherlands

来源：

JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES | 2023年 / 36卷 / 06期

关键词：

family; multiple disabilities; profound intellectual disability; siblings; support; DEVELOPMENTAL-DISABILITIES; MENTAL-RETARDATION; BROTHERS; SISTERS; PEOPLE; INVOLVEMENT; PATTERNS;

D O I：

10.1111/jar.13149

中图分类号：

G44 [教育心理学];

学科分类号：

0402 ; 040202 ;

摘要：

BackgroundAdult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. MethodWe examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. ResultsMost participants (89.7%) assumed multiple roles, and the majority were content with their roles. Between 7% and 58% indicated that they were the only individuals providing a certain role. Shared roles primarily involved healthcare professionals, other siblings, and parents. Almost half the participants (48.2%) assigned higher scores for the amount of support provided than for the experienced burden. ConclusionsAdult siblings often assume multiple roles. The shared roles emphasise the importance of collaboration.

引用

页码：1308 / 1318

页数：11

共 29 条

[1] Sibling Roles in the Lives of Older Group Home Residents with Intellectual Disability: Working with Staff to Safeguard Wellbeing [J].