Requirements for Brazilian Outpatient Centers of Excellence in Hidradenitis Suppurativa: Consensus

被引:1
作者
Bellei, Ericles Andrei [1 ,12 ]
Makinodan Shirozaki, Miriam Emi [1 ]
Pradella Puglia, Ana Lia [2 ,3 ]
Esteves de Carvalho, Andre Vicente [4 ]
Riquena, Barbara [2 ,5 ]
Vallilo, Camilla Carlini [2 ,3 ]
de Barros, Danilo [6 ]
Tamashiro, Erika Yumi [2 ]
Cintra, Gabriela [2 ]
Duarte, Gleison Vieira [7 ]
da Matta Rivitti-Machado-Machado, Maria Cecilia [8 ]
Magalhaes, Renata Ferreira [9 ]
do Nascimento, Ricardo Figueiredo [2 ]
Tunala, Roberto [5 ]
da Silva, Roberto [10 ]
Galvao Cesar, Wagner Guimaraes [11 ]
Thies, Felipe Garutti [2 ]
机构
[1] Novartis, Dept Data Digital & Innovat, Sao Paulo, Brazil
[2] Novartis, Immunol Franchise, Sao Paulo, Brazil
[3] Novartis, Dept Sci Operat, Sao Paulo, Brazil
[4] Hosp Moinhos de Ventos Porto Alegre, Dermatol, Porto Alegre, Brazil
[5] Novartis, Dept Med Affairs, Sao Paulo, Brazil
[6] Hosp Irmandade Santa Casa Curitiba, Dermatol Serv, Curitiba, Brazil
[7] Inst Bahiano Imunoterapia IBIS, Dermatol, Salvador, Brazil
[8] Univ Sao Paulo, Fac Med, Hosp Clin, Sao Paulo, Brazil
[9] Univ Estadual Campinas, UNICAMP, Sch Med Sci, Campinas, Brazil
[10] Rio de Janeiro State Univ UERJ, Dept Dermatol, Rio De Janeiro, Brazil
[11] Hosp Alemao Oswaldo Cruz, Dermatol, Sao Paulo, Brazil
[12] Novartis Biociencias SA, 90 Prof Vicente Rao, BR-04706900 Sao Paulo, Brazil
关键词
hidradenitis suppurativa; centers of excellence; co; -design; consensus; health services research; patient-centered care; community-based participatory research; healthcare innovation;
D O I
10.2147/CCID.S420750
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Background: Hidradenitis suppurativa (HS) is a chronic skin condition. Its complexity and impact on patients highlight the need for multidisciplinary care that can address the physical, psychological, and social aspects. Centers of excellence can ideally provide the necessary infrastructure, resources, and expertise to effectively treat HS. However, there are still no consolidated models of centers of excellence in HS, and establishing their foundations is an intricate research challenge. Purposely, design and co-creation as innovation techniques are helpful approaches to this type of research. Methods: In this study, we conducted a co-creation with consensus among HS specialists to propose the criteria and requirements to establish outpatient centers of excellence of HS in Brazil. We followed a linear process with mixed methods in 6 stages. Results: The process resulted in 10 categories for establishing outpatient centers, including their respective requirements, rationale, and classification. The categories include onboarding and welcoming; infrastructure and procedures; infusion therapy; flows and referrals; staffing; disease management; metrics during diagnosis; metrics during treatment; awareness and advocacy; research and education. Discussion: The idealized outpatient centers can play a role in the complete multidisciplinary treatment for HS and advancing the science of healthcare services by providing a focus for research, training, and translation of findings into practice.
引用
收藏
页码:2029 / 2044
页数:16
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