"Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults

被引：9

作者：

Lilley, Rozanna ^{[1
,2
]}

Lawson, Wenn ^{[1
,2
]}

Hall, Gabrielle ^{[1
,2
]}

Mahony, Joanne ^{[1
,2
]}

Clapham, Hayley

Heyworth, Melanie ^{[1
]}

Arnold, Samuel ^{[2
,3
]}

Trollor, Julian ^{[2
,3
]}

Yudell, Michael ^{[4
]}

Pellicano, Elizabeth ^{[1
,2
,5
]}

机构：

[1] Macquarie Univ, Macquarie Sch Educ, 29 Wallys Walk, Sydney, NSW 2109, Australia

[2] Cooperat Res Ctr Living Autism Autism CRC, Brisbane, Qld, Australia

[3] UNSW Sydney, Dept Dev Disabil Neuropsychiat 3DN, Sch Psychiat, Sydney, NSW, Australia

[4] Arizona State Univ, Coll Hlth Solut, Phoenix, AZ USA

[5] UCL, Dept Clin Educ & Hlth Psychol, London, England

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 03期

关键词：

Autism; Late-diagnosed adults; Participatory research; Identity; Family; Community; SPECTRUM DISORDER; MENTAL-HEALTH; PARENTS; EXPERIENCES; PHENOTYPE; CHILDREN; ONLINE; COMMUNICATION; PERSONALITY; DISABILITY;

D O I：

10.1007/s10803-022-05667-z

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.

引用

页码：1146 / 1161

页数：16

共 127 条

[1] Underconnectivity between voice-selective cortex and reward circuitry in children with autism [J].