A Comparison of Family Management Between Families of Children With Autism Spectrum Disorder and Families of Children With Down Syndrome

被引:3
作者
Page, Shayleigh Dickson [1 ,5 ]
Souders, Margaret C. [2 ]
Aryal, Subhash [3 ]
Pinto-Martin, Jennifer A. [4 ]
Deatrick, Janet A. [3 ]
机构
[1] Univ Penn, Perelman Sch Med, Epigenet Inst, Philadelphia, PA USA
[2] Univ Penn, Childrens Hosp Philadelphia, Nurse Practitioner, Sch Nursing, Philadelphia, PA USA
[3] Univ Penn, Sch Nursing, Philadelphia, PA USA
[4] Univ Penn, Perelman Sch Med, Sch Nursing, Philadelphia, PA USA
[5] Univ Penn, Perelman Sch Med, Philadelphia, PA 19104 USA
关键词
Family management; autism spectrum disorder; Down syndrome; CHILDHOOD CHRONIC CONDITIONS; PSYCHOMETRIC PROPERTIES; SOCIAL SUPPORT; YOUNG-CHILDREN; SLEEP; ASSOCIATIONS; BEHAVIORS; PATTERNS; ANXIETY; SCALE;
D O I
10.1016/j.pedhc.2023.08.009
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction: This cross-sectional study aimed to (1) compare fam-ily management between families of children with autism spectrum disorder (ASD) or Down syndrome and (2) evaluate the contribution of the child (ASD behaviors, feeding difficulties, sleep disturbances), caregiver (mental health) and family (social support) factors to the caregiver's perceived condition management ability and effort. Method: Eighty-five caregivers (56 ASD, 29 Down syndrome) completed quantitative instruments online. Data analysis included independent samples t-tests and multiple linear regression.Results: There were no significant differences in the dimensions of family management between groups. More ASD behaviors were associated with lower condition management ability and higher condition management effort. Lower perceived social support and higher care-giver age were associated with lower condition management ability.Discussion: Integrating care into family life may be more challenging when the child has more social differences and behavioral rigidity. Nursing care should include an assessment of family social support. J Pediatr Health Care.
引用
收藏
页码:61 / 73
页数:13
相关论文
共 50 条
[1]   Behavioral Pediatrics Feeding Assessment Scale in Young Children With Autism Spectrum Disorder: Psychometrics and Associations With Child and Parent Variables [J].
Allen, Stephanie L. ;
Smith, Isabel M. ;
Duku, Eric ;
Vaillancourt, Tracy ;
Szatmari, Peter ;
Bryson, Susan ;
Fombonne, Eric ;
Volden, Joanne ;
Waddell, Charlotte ;
Zwaigenbaum, Lonnie ;
Roberts, Wendy ;
Mirenda, Pat ;
Bennett, Teresa ;
Elsabbagh, Mayada ;
Georgiades, Stelios .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2015, 40 (06) :581-590
[2]  
American Psychiatric Association, 2013, DIAGN STAT MAN MENT, DOI 10.1176/appi.books.9780890425596
[3]  
Billioux A., 2017, NAM Perspectives, V7, DOI DOI 10.31478/201705B
[4]  
Boyd B. A., 2002, Focus on Autism and Other Developmental Disabilities, V17, P208, DOI [DOI 10.1177/10883576020170040301, https://doi.org/10.1177/10883576020170040301, 10.1177/10883576020170040301]
[5]   Clinical Report-Health Supervision for Children With Down Syndrome [J].
Bull, Marilyn J. .
PEDIATRICS, 2011, 128 (02) :393-406
[6]   Parent Perspective on Care Coordination Services for Their Child with Medical Complexity [J].
Cady, Rhonda G. ;
Belew, John L. .
CHILDREN-BASEL, 2017, 4 (06)
[7]   The Social Responsiveness Scale (SRS-2) in school-age children with Down syndrome at low risk for autism spectrum disorder [J].
Channell, Marie Moore .
AUTISM & DEVELOPMENTAL LANGUAGE IMPAIRMENTS, 2020, 5
[8]   Patterns of autism spectrum symptomatology in individuals with Down syndrome without comorbid autism spectrum disorder [J].
Channell, Marie Moore ;
Phillips, B. Allyson ;
Loveall, Susan J. ;
Conners, Frances A. ;
Bussanich, Paige M. ;
Klinger, Laura Grofer .
JOURNAL OF NEURODEVELOPMENTAL DISORDERS, 2015, 7
[9]  
Christensen DL, 2016, MMWR SURVEILL SUMM, V65, P1
[10]  
Cohen J., 1988, Statistical Power Analysis for the Behavioral Sciences, DOI 10.4324/9780203771587